Where in the world has Leah been??
You know what... I lost a whole day this week. I had that MRI on Wednesday... and I don't even remember it. In fact I don't remember that day. Just little pieces of it I do remember. They gave me a valium since I am really claustrophobic. My husband told me that I did well and they put a washcloth over my face. I don't remember that. My daughter and I went to walmart and apparently purchased a barbie, a couple of hula hoops and a gift bag for my neice.... and took them to her at my dad's. I don't remember that either. I do remember laying down at my dad's. But that is about it. What a trip. I woke up in a panic on Thursday thinking it was Wednesday needing to get ready for the MRI! Good grief.
And if there was any texting girls... I don't remember it.
The neurologist I saw on Monday gave me topamax and midrin. So far both are being tolerated by my pouch. Though it makes me a little woozy. The lyrica still makes me VERY nauseas but I don't puke it up. My pain level is still the same though. There is a new word the drs are floating around Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy http://www.rsdhope.org/Showpage.asp?PAGE_ID=3&PGCT_ID=545 That really sounds like they are finally on to something. Reading up on it, it sure sounds like me. The neurologist is wants EMG on my arms and wants to test my oxygen saturation while I sleep. Also sending me for a neuropsychological exam. WHEW!! Tell you what. I am worn out just thinking of all this. I have not heard a word from the disability company at work who were stated they were sending me for an independent medical evaluation. All my drs said that is a normal thing and they were all surprised this has not been requested all ready. So that makes me feel a little better. However, the neurologist says I am no longer allowed to drive. That really hit me hard. I know it is best. I have had so many close calls. I just cant keep my mind focused long enough be safe. Any little thing distracts me. Scary.
Most of the day... I sit and stare off into space. I can't even follow a tv show for the duration. I just can't keep any focus. Its scary. I know that there are so many people so much worse off. I am just so scared I am losing my mind. I feel so lost and scared. I feel so guilty and such a burden on all my family. I am 44 years old yet feel like I am 100! My therapist says that all of this is normal. I just need to be patient. Patience is not one of my better qualities. My eating hasn't been that great. I am not getting in enough protein. My weight loss has stalled. I am not eating enough I know. When I do eat its yogurt or a popsicle.
I am not on the computer very often since I can't keep my mind focused. Its hard to even write this much. But I felt I should try explain where I have been.
Love and warm hugs to you all
And if there was any texting girls... I don't remember it.
The neurologist I saw on Monday gave me topamax and midrin. So far both are being tolerated by my pouch. Though it makes me a little woozy. The lyrica still makes me VERY nauseas but I don't puke it up. My pain level is still the same though. There is a new word the drs are floating around Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy http://www.rsdhope.org/Showpage.asp?PAGE_ID=3&PGCT_ID=545 That really sounds like they are finally on to something. Reading up on it, it sure sounds like me. The neurologist is wants EMG on my arms and wants to test my oxygen saturation while I sleep. Also sending me for a neuropsychological exam. WHEW!! Tell you what. I am worn out just thinking of all this. I have not heard a word from the disability company at work who were stated they were sending me for an independent medical evaluation. All my drs said that is a normal thing and they were all surprised this has not been requested all ready. So that makes me feel a little better. However, the neurologist says I am no longer allowed to drive. That really hit me hard. I know it is best. I have had so many close calls. I just cant keep my mind focused long enough be safe. Any little thing distracts me. Scary.
Most of the day... I sit and stare off into space. I can't even follow a tv show for the duration. I just can't keep any focus. Its scary. I know that there are so many people so much worse off. I am just so scared I am losing my mind. I feel so lost and scared. I feel so guilty and such a burden on all my family. I am 44 years old yet feel like I am 100! My therapist says that all of this is normal. I just need to be patient. Patience is not one of my better qualities. My eating hasn't been that great. I am not getting in enough protein. My weight loss has stalled. I am not eating enough I know. When I do eat its yogurt or a popsicle.
I am not on the computer very often since I can't keep my mind focused. Its hard to even write this much. But I felt I should try explain where I have been.
Love and warm hugs to you all
Blessings to you all, Leah
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Oh Leah, I'm sorry you are going through all of this. I will keep you in my prayers and hope that the docs have figured out the right diagnosis and meds. Please let me know if there is anything I can do for you.
Surprise MIRACLE baby boy, Noah Andrew, born March 24, 2010
Check out my WLS blog at: www.melissawlsjourney.blogspot.com
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Check out my WLS blog at: www.melissawlsjourney.blogspot.com
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DS on 11/14/12
(((((((((LEAH))))))))) I tried to figure out the text msgs and finally chalked it up to some dang good drugs! I am thinking about ya. Alot going on here so my txting is minimal.
Leah if you need anything let me know. I live in town and would be happy to bring anything you need to you or what not just hollar at me. You can call me up even if you just want company or something. If I don't answer leave a message. I'll PM you too with the cell phone I have access to now but its a prepaid thing.