Mixed emotions re Lyn
Ok --I need my friends here. Right now I am feeling happy, excited, scared, sad and all kinds of things. They came in this morning to talk about options after Lyn leaves here, which I thought would be 2 or 3 months. They asked about nursing home vs home and I said home. They then said they were looking at 2 or 3 weeks possibly. She then said since he wasn't doing so good being off the vent. I explained he had surgery which set him back but yesterday he was off 4 hours and today 5 hours so far. I just got this weird feeling that they were giving up on him. I asked her that and she said no. She explained the longer he is here the easier to get infections which I know is true.
I want him home and I think being around the dog and family kids and grandkids would be great. I just don't like the idea of him not getting any therapy much but I also know if he would ever wake up enough to participate in therapy he could go there.
My son asked me yesterday what they were doing here that I couldnt do at home. I could do the feeding tube, the vent, IV's, wound care and etc so really not a lot.
I just do not want anyone giving up on him. I want to do what is best for him. I know it would be a lot of work but I have taken a leave from my job and probably won't be able to work again if I take him home and that is ok---I want to be there taking care of him.
I just hope and pray he gets better in 2 or 3 weeks. Possibly the stimuli of familiar things would help him wake up.
Sorry to unload on all of you but just had to get some emotions out there. Terry
I want him home and I think being around the dog and family kids and grandkids would be great. I just don't like the idea of him not getting any therapy much but I also know if he would ever wake up enough to participate in therapy he could go there.
My son asked me yesterday what they were doing here that I couldnt do at home. I could do the feeding tube, the vent, IV's, wound care and etc so really not a lot.
I just do not want anyone giving up on him. I want to do what is best for him. I know it would be a lot of work but I have taken a leave from my job and probably won't be able to work again if I take him home and that is ok---I want to be there taking care of him.
I just hope and pray he gets better in 2 or 3 weeks. Possibly the stimuli of familiar things would help him wake up.
Sorry to unload on all of you but just had to get some emotions out there. Terry
Hello Terry, i don't know the extent or what has went on with your Lyn fully, But i want to say to you that you seem like a very strong woman and especially through a tough time like this. I can only feel the emotions your going through right now and i know you will do what's best for you and Lyn. I have been and will continue to pray for you both. and remember god is a never failing god...
Tisha
Tisha
Terry, I know this is all coming as a shock to you and you are overwhelmed with the fact that it is coming down to decision time once again. Please don't give up on yourself. Keep the faith in knowing you can pray for a right answer and God will provide it to you.
You are trained by profession to be an RN and what better caregiver could there be for Lyn than his very own RN who just happens to love him so much. You will do fine taking care of him. I do understand that you also feel it might be better to have him somewhere that they will do therapy and things with him. Start discussing this with them now. See what your options are for home healthcare to come do therapy and things with him. Don't look at it as giving up... look at it as making a change. Just start praying even harder. I know it seems like its not possible... but it is. Ask God's will for your life and for Lyn's be done.
I wish I could be there to hug you when you need it so badly.
Please know I think the world of you and want whats best for you and Lyn both.
Huge hugs, and more prayers!!
Tracy
You are trained by profession to be an RN and what better caregiver could there be for Lyn than his very own RN who just happens to love him so much. You will do fine taking care of him. I do understand that you also feel it might be better to have him somewhere that they will do therapy and things with him. Start discussing this with them now. See what your options are for home healthcare to come do therapy and things with him. Don't look at it as giving up... look at it as making a change. Just start praying even harder. I know it seems like its not possible... but it is. Ask God's will for your life and for Lyn's be done.
I wish I could be there to hug you when you need it so badly.
Please know I think the world of you and want whats best for you and Lyn both.
Huge hugs, and more prayers!!
Tracy
Terry, can't the home health care they would set up to help you have therapies out to help? I know when I just went with signing all the paperwork for my home health care, they asked about needs for OT, PT, ST. Just a thought. Hope you get him home soon where I'm sure things will stimulate him more than at Seton.
Surprise MIRACLE baby boy, Noah Andrew, born March 24, 2010
Check out my WLS blog at: www.melissawlsjourney.blogspot.com
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Check out my WLS blog at: www.melissawlsjourney.blogspot.com
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