feeling bad for my daughter

(deactivated member)
on 10/18/09 3:29 am - Lafayette, IN
my 17 year old is really having a hard time. she is hypothyroid, insulin resistant, has pcos and asthma. she is 5'5" and weighs about 230#. her bmi is around 38. she is ALWAYS hungry. she is very physically active. she exerciss 5 days a week for at least an hour. she is in marching band and their conditioning schedule is more intense than her schools football or wrestling teams. at this point i dont know what to do for her.
(deactivated member)
on 10/18/09 4:25 am - Lafayette
Wow.....poor kid.  I have all of those metabolic issues that you are talking about for her.  Is she on anything for the insulin resistance or PCOS?  I know when I was first diagnosed the metformin was a life saver.  It gave me more energy and helped the weight stablize.  Also, have her vitamin D and B12 levels checked as that sometimes can contribute (or at least it did in my situation).

I hate the idea of surgery for kids, but there are surgeons that take patients as young as 16.  My surgeon Dr Mattar will see kids.

Stacy Walker

MistyLynn81
on 10/18/09 2:34 pm - LaGrange, KY
Boy can I sympathize with her. I was 17 and about 240 or so at 5'3ish and had PCOS and Asthma needing constant steroid use. Was active and all that and the weight just kept piling on it was terrible.

Is she seeing an endocronologist??? That would be my first suggestion.

I wish I knew the words to say! It sucks when your just a kid and have to worry about that stuff.
(deactivated member)
on 10/18/09 11:07 pm - Lafayette, IN
hi misty! yeah, she is seeing an endo.she is on metformin and about 150mcg of synthroid and making no progress on the appetite and weight. she is on a steroidal inhaler but has never had to take oral steroids. i didnt think the inhaler would affect her the same way as oral meds. i would love to suggest my surgery for her but she is not ready to deal with the issue yet and has a lot of trouble remembering to take her current meds so adding lots of vitamins and minerals is not a good idea. the pcos is bad enough that she hasnt had a period in about 7 months and she is on her second round of provera to try to induce a period. her endo says if she doesnt have one after this round she is going to be referred to a gyn for a possible d & c and then be put on bc to regulate her cycles. trying to monitor her diet is almost impossible as she is away from home approx. 12 hours a day tues thru sat and then sleeps all day on sunday. lots of saturdays during marching band season she leaves before anyone else is up and doesnt get home till after midnite. i am just at a loss as to how to help her.
MistyLynn81
on 10/19/09 2:02 pm - LaGrange, KY
I went two years with no period, many cycles of provera and prometrium and had to have a d&c with hysteroscopy about 3 or so years ago, had to stay on provera for 9 months after then put on BCP. They may want to do an endometrial biopsy since it's been so long since she's had a period also. I had to have them every 3 months for about a year then every 6 after that for a couple years and now I just see my PCP for my annuals because my pcos symptoms aren't as bad and my periods are finally a little bit more regular (they go from 28 days to 43 days then 31 days then 28 then 50 etc.. its terrible because im not on bc right now lol sooo when it's really late we end up buying pregnancy tests to make sure).

If your daughter wants to talk to someone a lil closer to her age I would be more than happy to befriend her and give you my email addy or what not. Just let me know.


How are you doing Heidi?
(deactivated member)
on 10/20/09 12:17 am - Lafayette, IN
i would be thrilled to give her your info so that she has someone (other than mom) to talk to.  i myself am not doing so hot. deeling with a terrible bout of depression and ALL of my labs are completely out of whack.... especially the one related to iron. but, i have met a wonderful lady on the ds board who is really helping. it may take 6 months but i am sure, with her help, i will get things back on track. of course at this point i am really wondering if they were ever on track to begin with.
MistyLynn81
on 10/20/09 1:42 am - LaGrange, KY
I know the iron thing all toooooo well. I've always been anemic even preop (my hemaglobin was 9.4 the morning of surgery). Post op I've had to have 3 blood transfusions and 10 iron infusions. lol sooooooo if you find a magic cure please do share.
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