Lyn and Terry update

Well I will include myself tonight since some of you have been asking.

Lyn had his surgery this morning for the permanent feeding tube.  He went to 86th street for it.  He did very well, the surgeon said he was embarrassed though because the incision he made for it is almost the size of the incision Dr Huse used for his open RNY.

He was able to be off the vent with just O2 6 hrs the last two days.  they did not take him off today because of the surgery but 6 hrs is good.

I have been trying to help do what I can to take care of him.  Gives me something to do besides sitting here watching him.  The nurse could not get his blood today and I told her where she might be able to get it and she said "then you come and get it"  So I was able to draw his blood for her.

I have still just been home 2 times in 32 days.  I have been sleeping here at Seton in a chair most nights.  1 night out of the 2 weeks here I got the retreat room so I had a fold out chair then instead of just a regular chair.

I went home last Sunday overnight and weighed then and I had lost 41 pounds at that time so that is good.  It is kinda hard to eat, a lot harder to eat here than at 86th street since they have a very limited cafe here.  I find I am grabbing fast food or a sandwich here and just eating what I can.  I did go out tonight and get Wendys chili.  Also got a cinnamon dolce SF starbucks skinny latte as a treat, actually just to get some more protein in which I am not always good at.  I think someone said they had a lot of protein in them?

I do know I am going to have to get out of here someday and go to a Goodwill or someplace and look for some smaller clothes. I heard the Carmel area has good Goodwills, does anyone know of any?  Shirts can be worn big but my pants are getting pretty loose.

I have had some people tell me I need to leave the hospital some day and do something relaxing for myself.  It is a bad time to be thinking of anything pampering since I am not longer working but someday I may just do something.  Brenda was telling me last week how relaxing a pedicure was and I told her I had never had a pedicure or massage.  So I may surprise myself if I have a really bad day and splurge for a pedicure.  And just so your all know, which you will all think is gross but after a month I finally took the time to shave my legs a few days ago--bout had to start using shampoo and conditioner on my legs it was so bad.

Seriously though I am hanging in there.  I try to stay positive although every once in awhile I think forward to the future and the uncertainity.  I ask the questions, Will he make it thru this?  Will he be like this forever? and if so what will we do and what options will we have?  But I am trying to take it one day at a time.  If there is no good news for the day I just think maybe tomorrow.  I just know life is never gonna be the same.

You will all never know how much you have all helped in so many ways.  I hear what is going on in other peoples lives and realize how many blessings we do have.  I have learned strength and faith from all of you.  I have heard of many losing jobs, facing financial problems and facing illness and death.  Believe me as I am with you on these issues now I think to the strength you have continued to have during these trials and it makes me stronger---again  ONE DAY AT A TIME.

Love you all,  Terry

Oh sweetness....you sound like me with the ole leg hairs...i would tease and tell people i was going to put dreads in mine....

as far as clothes what size are you in...we have so many people shedding their clothes...maybe we can come up with some for you....just an idea if anyone reads and is interested....

i think pampering yourself should be a treat! you do need to have some YOU time...trust me you have to keep your sanity some how....

its normal to think about what might be...sounds like Lyn is having small improvments...its babysteps babes....so its goin to take awhile...and no matter what...you are the strongest woman ever....i have faith that you can handle anything....

big hugs and lots of prayers

Kim

Terry
I been thinking about you.
Do treat yourself you deserve it and your weight loss is awesome.
Huggs

Terry,

Thanks for the update! You both continue to be in our thoughts and prayers! I am glad to hear that Lyn is having some improvements! I agree, babysteps!

I hope that you are able to get out a bit and pamper yourself, taking some time for you is important too!

I agree also that so many on the board are shedding their clothes, hehehe, what sizes are you needing? Maybe someone that will be coming to Maggies Bowl could bring some and we could get them to you! If you had a moment and felt like getting away for a bit, we would love to visit with you! As you can see there is going to be alot of OH family and friends together! We have lots of support to give! Hugz TOO!

I hope that you are able to find some healthy ways to get everything in that you are needing! I know that when you are faced with so many stresses that it can be difficult to take care of yourself! Remember, it is not selfish, but necessary! We worry about you as well!

Sending lots of hugz and prayers for both of you as you travel this uncertain journey! Hugz Dawn

They say you know your old when you dont have to shave above your knee... I shave everytwo weeks and it is usually never more than 1/2 way up my shin!! I think I could pluck them!!

I dont do the pedicure but the manicures I do every 2 weeks!! But my neice does the pedicures and says they are the ultimate relaxation..

Keeping an eye out for my sister has been rough too.She has been in and out of the hospital because her immune system is down. I need to go get my top teeth pulled and detures put in but I am afraid I would be out of touch to long so I keep putting it off. Her brain tumor has shrunk to 1/2 the size and her lung tumor hasnt grown in the last 6 weeks!!

You are such an inspiration to deal day after day... but that is what love does isnt it?? we do what we need to do then we take care of ourselves... But I have found out that taking some me time inbetween also really helps me give her more of my attention.

May God be with you and Lyn and wrap you in his arms and give you peace.

Linda Kay

Terry!!!!!! My name is Sabrena, I am fairly new to this site, but have been thinking of you and your husband.  I want to see if I can help you.  First off, what size clothes are you wearing?  I have outgrown some of mine after losing 46 pounds and may have a pair of pants or 2 for you....and I don't live very far from St. V's....also, my husband owns a nail salon in Plainfield, which I happen to work at a couple of days a week and I would like to offer you a complimentary manicure/pedicure at no cost to you!!!! I will be the one to do it.  Just because you deserve a treat.  I am sending you my cell phone number....call me and let me know when you might want to try and fit it in and I could bring some of the clothes then as well!

Sabrena:)

Terry,

Thank you for the update and Lyn & yourself.  I haven't quit thinking about you two hon. My life jsut got so nutty the past few weeks. I don't look for it to improve for a month or more so if you don't hear from me, know that you are on my mind & in my heart.

I hope you take Sabrina up on her offer. I've only had one pedi and I loved it. This one will be even better for you that mine was. I had an oriental girl and she talked with the girl next to her the whole time..and of course, not in english. With Sabrina, you won't have to be wondering if she's telling someone that you have yucky feet or something. lol.

Call me if you ever need to talk...

Sherri

Terry,  thanks for updating us.  I was wondering all day how things were going.  I had you in my prayers as always.  I will bring you some clothes if you tell me what size you need.  I could make a trip up to see you today.  Give me a call.  I will PM my cell number to you.  Kim and I were thinking about coming up there to see her cousin at St. V's anyway.

I also wanted to tell you, I have an inflatible twin size bed with a built in pump if you could use it.  I don't know if there is some place there you could put it for nights when you want to lay down.  I know Lyn's room is small but it would be a nice change once in a while.  You would rest much better.  It also will pump the air out and fold down to a carring bag when not being used.  Let me know and I will bring it to you as well.

Huge hugs!

Tracy

one of my fav songs, ONE DAY AT A TIME...thatsabout it in a nut shell, now Ed my husband was not as bad as your hubby is, but he was depressed on top of everything else...going on with him, he was ready to just give up....I remember having to push him for every little thing and i had to finally tell him if he wanted help he had to help himself, i even tried to get his family to go up when i could nto be there and make sure he sat up or walked or ate, they did not do it..anyway...shut up Angela...there are several goodwills in the greenwood area and i would go to them all the time hey i still go all the time..love my goodwills....hate to pay full price for anything, and as fast as i was going through sizes it worked for me....you have got to take care of you...you are the care taker and if you enjoy a movie or whatever it is you enjoy you do these things from time to time and do not even think bad of your self.....but make sure you are getting your protien and water in and gotta take the good days with the not so good days...being off the vent for a little time here and there is awesome though, and the start of his healing and his body starting to take back over.....(yeap call me dr Angie) lol....i know you are worn out.....been there at the hosp for months at a time...a week wears me out...tell him come on and fight and get home...so you can start your healthy lives together....dang it..was not to have been this way...

It is going to get better....I just know it is and your new healthy lives will be what you both had planned..and just gonna take time, like with ED and Ed will still say after all he had been through he would do it again...and i am thinking...oooh no you wouldn't....lol.....
Prayers and Hugs.....

Terry,   You sound good thank you for the update on both of you.  Be sure and get your self to Plainfield, that is so nice.  Let's get together one day next week.  call me 317-408-0789  any time  Sheila E.