Tales from the dark side

Hi honies-he's home!  No surgery for now.  He saw the surgeon on Sunday, and after examining him and again going over the x-rays he suggested surgery ASAP.  That just put Eddie into more of a state.  He was sitting in his room in darkness when I got there and looked like a wake waiting for the corpse to arrive.  Wouldn't talk or eat.  Told me to leave, so I did.  I stopped at the nurses station and voiced my concern over his mood and they poo pooed me-I told them things are happening too fast-he needs time to process all this.  Then they sent in everyone but the janitor to go over him and test for this and that and then they tell him his kidney is failing-the transplanted one and he had a melt down.  Called me to come get him and signed himself out AMA.  It was very quiet at my house last night.  Today I ran all over trying to get some financial aid until his disability starts, took him for a dressing change and the hand surgeon is pissed 'cause no one called him and asked if he should even be contemplating surgery w/this infection.  So this little jaunt convinced  Mighty Mouth that he can't function on one leg so we go to the knee surgeon-hat in hand and apologize for the melt down and he tells us he can't even get the parts until MAYBE Friday so he would have been sent home anyway.  The manufacturer of the implant says this has only happened twice before.   Now he's concerned about the infection too, but if he doesn't repair the knee soon he may have to replace the whole implant, meaning even more time from work. The PCP calls and says he thinks he was just de-hydrated and not to worry about the kidney-he'll run more labs tomorrow. All the supplies arrived today for the home infusions-my house looks like a hospital-I'm going to put Xmas lights on the IV pole!   I see Dr. Rantis tomorrow and hope he has some idea what is causing this belly pain besides Eddie.  We did make it clear to the surgeon that the nurses @ CDH can not play God with Eddie's med's like they were-ESPECIALLY the immuno-suppressants and he assured us that both he and our PCP will be monitoring everything closely now that everyone has decided to pee in each other's sand boxes!  Chris B is SO right-they practice medicine.  Thank you all for the prayers-we need them and keep Marilyn in them too.  Depression is a very bad thing.  Glad to see Miss Lucy post-I was worried about her too.  Back to the dark side-thank God he doesn't have a bell to tinkle-I would have to smother him w/a pillow. Hugs to all-Janet K

Good morning Janet. I am so sorry to hear of your continued woes and struggles. I was so touched that you would even think of me when you have so much going on at home. Please know that I am praying for you and hubby. I can't imagine going through what you are. It sure puts things into perspective. I am doing fine and think that I will be myself again after my visit with Dr. Guske next Thursday. I do need some medication as this feeling of depression has been going on for months now, It took a good friend to make me see it. I will keep you and hubby in my thoughts and prayers. Hugs, Lucy

Hi Janet, I just wanted to offer my support to you.  I will be praying for you....hang in there. love, Paula

Holy Chit Janet This cycle of bad stuff has to stop for you and DH!    I would love to see a miricle just happen for you both over night!   Really I would......you desearve a break from all this bad stuff attacking you!   You have such a great attitude in all this, I don't know how you march thru! You surely will be in my prayers and I am going to pray for a big break thru!   You have suffered enough! Love you sweet lady Pam

Janet you have gone through so much that you need a break and one is coming or you soon. Hang in there dear lady, you will get through this.