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WOW!!!!
My life has been crazy too, but I've been trying to pop in here a couple of times the last few weeks. Kinda seems like the same old thing though - once you're a few months out, it doesn't seem like people care a whole lot! I think it's really a shame, because I love hearing from people and often wonder about the ones who had surgery around the same time as me. I'm so glad to hear you're doing so well!!!
Congrats - and I wanted you to know that someone read your post!!!
Amy
265/154/150
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It's quite a procedure for being diagnosed. You need to see an endocrinologist and just getting in here in DM is a challenge.
The first thing I had to do was prompt an attack and have labs drawn. My insulin, proinsulin, and c-peptide were all elevated. My sugar was 38. Next I had to do an 18 hour fast to prove that it is after eating and not fasting. If it's low with fasting, it's probably an insulinoma not increased beta cell mass.
Then they shipped me off to Mayo and I had an ultrasound, CT, and more labs, including an insulin antibody test and a test to see if I was doing it to myself. Yeah, like I like feeling like crap. The next step is the calcium stimulation test. They use the femerol artery and vein in your groin. They draw base line insulin values from each of the 3 areas of the pancreas then stimulate insulin production in each area and check the insuline levels again. From that they can tell if its the whole pancreas or just part.
Mayo is doing research on this and they are the ones who developed the cal stim test. They only do about 1 a month and so far are following 50 patients who have had part of their pancreas removed. But they think it's the tip of the iceberg.
If you want more info, I can email you a Mayo research paper. Email me at [email protected].
Thanks for your support! I'm going to try to take my laptop with me if they have free internet.