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Mine are dry. The ones from the pharmacy are oil, and they are usually D2. My D3's are over the counter and I buy them online.
We can't absorb the D2's from the pharmacy very well at all and they're basically worthless to us post op.
I'm taking Bio Tech brand, and the bottle says "D3-50, Cholecalciferol, Dietary Supplement". I paid around $30 plus shipping for 100 capsules and it lasts close to a year. Not sure if adding a link is ok in here but you can find the Bio Tech website easily if you Google it.
Hope this helps. Take care and good for you for getting on top of this now. It's critical, as you're discovering, but not every surgeon educates their patients sufficiently.
Hey there. Doubt if any of my old buddies are still here. Had DS in 2005 and am having a few issues from malabsorption & nutritional deficiencies. Wondering if anybody has any of the following:
1. Calcium and no constipation? I'd be in heaven if they could fix this problem with a calcium infusion like they do have for iron deficiency (venofer)
2. I've got consistently high levels of B12
3. Recent fatty liver diagnosis. Haven't touched a drop of alcohol since 1986.
I'm going to see a Gastro and am trying to decipher what to ask them for? Never been before. Id love to see if they can give me anything either to inject or via IV. Has anybody every been given calcium thru IV?
Feeling brain ? fog ? & fatigue.
Thx for any suggestions.
A grateful DSer forever!
SW 223 CW 132 GW 117-125
Your levels are very concerning. My hemoglobin went to 8 and my doctor was alarmed. I had the iron infusion the next day. The dry vitamin D3 comes from Biotech. It has a 50,000 IU dose. Your vitamin A levels are also concerning. Biotech has a 25,000 IU dry vitamin A. You can search posts on this site about what people take, but you should use your labs as a guide for what you need. Everyone's vitamin needs are different. There are many good brands, but these are the ones I take daily, except when noted. Don't take any vitamin in an oil based capsule. The doses are tweaked here and there over the years based on my labs and/or research. I find it easier to remember them alphabetically.
A (dry from Biotech) 25,000 IU daily.
B (stress complex from Twinlabs, because of my low B labs. Check labs before using) 250 mg daily
C (from Soloray, helps increase absorption of iron, take them together) 1000 mg
Copper (from Soloray one tablet a week, not with zinc) 2 mg
D (dry from Biotech) 50,000 IU daily (took more when my labs were low)
E (dry from Soloray) 400 IU
Iron (Proferrin with vitamin C before breakfast, not with zinc or copper) 28 mg
K1 (dry K1, from Soloray, every other day) 100 mcg
K2 (dry K2 from Relentless Improvement) 15,000 mcg (this is a lot more than most people take but I am at risk of osteoporosis] 3 daily, not all at once
Multivitamin (I use Centrum)
Zinc (from Soloray, three times a week, not with copper or iron) 50 mg.
I organize them in three 2-week trays from the drug store, which minimizes the work and reminds me to buy ones I have a low supply). Again, your needs may vary from mine, so get a good panel of labs for vitamins and minerals and the advice of a bariatric nutritionist and go from there.
I am so impressed with your being a caregiver for your husband. It's a ruthless disease and it is very hard to be a caregiver. Kudos to you.
HW 372 SW 350 CW 185 GW 150 Lost 187 so far....
Rainier Hematology/Oncology
Dr. Katherine (Ludwila) Martin
253-241-4296
There you have it. I'm really glad your own doc is paying attention now and giving you some blood. Two units is substantial and I'm glad it's being addressed.
As far as the Vit D, many of us supplement significantly. I take 50,000IU twice per week personally. There are people who take even more, and people who don't need to supplement much at all. Most docs would cringe at the higher numbers but eventually come to terms with larger doses if labs pan out and improve.
Good luck getting better. If you think of it and have a moment maybe you can check in and let us know how it's going. It can take a long, long time to get blood situations in order so once you're in a good spot make sure to stay vigilant.
HW 372 SW 350 CW 185 GW 150 Lost 187 so far....
Thanks Charlie,
I can't wait to read all about your amazing journey I am sure our community will be very inspired!
Regards,
Kathy
Member Services
HW:330 - GW:150 - MW:118-125
RW:190 - CW:130
Kathy.
I just saw your post from a few months back. I still look at the forums, just not as active as I was in the early years. I found OH to be my greatest resource before, during and after my surgery. I am always open to help others make this life changing decision. There are so many people I want to just walk up to and show them my before and after pictures and tell them there is hope. But I also know I probably would not have been very receptive if someone had done this to me.
If you think I can be of encouragement to anyone I would be happy to share my experience.
I'm sorry you're dealing with this. My issues are similar and there have been many blood transfusions and iron infusions since about three years post op.
After much searching I've found a hematologist who has made all the difference and is the first doc ever to be able to help me sustain acceptable results.
I'm in Washington but if you can't find someone to treat you sufficiently where you are you might want to consider making the trip. Rainier Hematology and Oncology in Puyallup with Dr. Kathleen (Ludwila) Martin. She treats these issues very seriously and has been a godsend and an eye opener for me. If you're interested I'll dig up her phone number.
disclaimer: you may have something else actually going on so unless you've got a diagnosis you might have to do some testing or provide some history. It's easy to assume what's going on when you see numbers like yours but it's 100% necessary to have a hematologist *****searches all options.
Once levels get as low as yours it can take many treatments to get them up to or near normal.
Blood transfusions certainly can make a person feel better soon afterward. Handle it now and push for what you need. My last transfusion was five units. Yep. 5. Dr. Martin had me tracked down in the grocery store. That's how pro-active she is, and how dedicated. I hung out in the ICU for a couple of days.
You don't want to get yourself into that situation just because no one is paying attention. Any readings under eight should get you sent to the ER asap - a "normal" healthy adult should have between 10 and 12 units.
Good luck and stay the course. It can suck for awhile but it can get better. It can even get "normal" believe it or not.
Sorry I have the same issue. My levels keep changing because Im trying to adjust with dosage and brand....because I get constipation. But next month I will get another reading to see my new levels
SW / CW / GW 292 / 188 / 174 - Height 5'7, Size 10