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jeannieb793
on 5/16/19 10:09 am
Topic: RE: My labs are terrible for anemia, no vitamin A or Vitamin D, low B 12 low iron I need help

DO they get referred by a hematologist or an endocrinologist for the vitamin infusions? MY primary care dr is willing to refer me he wants to but honestly doesn't know who to refer me to THere are no doctors in my area who did duodenal switch and my drs office from years ago didn't call me back I appreciate any help

Dnicko76
on 5/16/19 10:08 am - Lawton, OK
Topic: RE: RNY to DS at the dr now

im sitting here scared that they are going to tell me no. I had RNY 11 years ago gained all the weight back. My insurance will cover the DS so here I sit. ANy tips for me? How different is it than the ArNY recovery times

Eliza970
on 5/16/19 6:31 am
Topic: RE: Expert Panel on Revisions to DS

Himpins is a DS surgeon who works in Brussels. He performed the first DS in Europe in 2001.

caseycc
on 5/15/19 1:13 pm
Topic: RE: My labs are terrible for anemia, no vitamin A or Vitamin D, low B 12 low iron I need help

Valerie,

I have read that about mega doses of Vit D3 for gastric bypass patients on a FB Vit D board and I'm working up to it, starting with magnesium and I just added Vit D (oil capsules) and then I'll add the K2 for cofactors (Vit D cofactors I learned about). I just re-started iron infusions & B-12 shots. Do you know if dry vitamins are recommended for RNY Roun-X (or Y I don't remember) gastric bypass patients (I had a banded operation done 25 years ago, weight regain and had a revision to RNY gastric bypass (but weirdly I could eat more immediately after "revision" & didn't throw up anymore after eating like I did with the band) & lost 60-70 10 years ago but have gained it back with dr burnout from health conditions possibly related to deficiencies and thyroid so I stupidly didn't go to drs or treat my thyroid for 2 years and health got progressively worse along with quality of life. I stumbled onto your board researching vitamins. I haven't heard much about the switch. I know I don't want to undergo another revision and I probably need to work on the issue of why/how to overcome emotional reasons I use my weight to protect me (childhood sexual abuse) and then maybe I could loose some of the regained weight.

Valerie G.
on 5/15/19 11:55 am, edited 5/15/19 4:56 am - Northwest Mountains, GA
Topic: RE: Looking for a BPD/DS doc nearest me

Sounds like possible bacteria imbalance to me especially if your stools are particularly foul in odor (sour smelling). Have them test you for SIBO and C-Diffucile. It may be as easy as balancing your gut bacteria. They didn't pay that much attention to such things way back when, even when I had mine in 2005.

Valerie
DS 2005

There is room on this earth for all of God's creatures..
next to the mashed potatoes

Valerie G.
on 5/15/19 11:52 am - Northwest Mountains, GA
Topic: RE: Expert Panel on Revisions to DS

I find this to make sense, but interesting that I only recognize Michael Gagner and Rosenthal as being actual DS surgeons.

Valerie
DS 2005

There is room on this earth for all of God's creatures..
next to the mashed potatoes

Valerie G.
on 5/15/19 11:48 am - Northwest Mountains, GA
Topic: RE: My labs are terrible for anemia, no vitamin A or Vitamin D, low B 12 low iron I need help

Dry vitamins are water soluble. They are capsules filled with powder instead of oil. DS patients malabsorb about 80% of the fats they consume, including that oil, so they are pretty useless to us in that formula and all of the prescription meds for A, D, and K come in that oil.

The funny thing is that you can purchase these dry formulations in megadoses without a prescription at all through Amazon. Biotech is the brand that has everything you need, but there are other brands nowadays.

Now, I'm going to warn you that this will freak the beejeezus out of your doc, but I promise you that none of us ever get too much of these. Maintenance doses for dry D3 are 50,000 iu (but many take up to 250,000 iu trying to bring your levels up). Maintenance doses for dry A are 25,000 iu (but many take 4x that or more when deficient). Your doc will be afraid of you going toxic, but it's just not going to happen. Just suggest if they resist that you be tested in 3 months to see how they are doing. It took me a six months of 100,000 iu to get my level from 12 up to 80-something, barely normal. I continue with 50,000 iu to keep it normal, but when it dips I double it again for several months.

Valerie
DS 2005

There is room on this earth for all of God's creatures..
next to the mashed potatoes

Valerie G.
on 5/15/19 11:33 am - Northwest Mountains, GA
Topic: RE: Hunger

I call these my hollow leg days (13 years out).

I too, eat every few hours, even if it's a few nibbles of cheese. The caution is to try to snack on beneficial foods. If you start with bad snacks, you will continue craving those snacks. I've been in that cycle a few times, so heed my warning.

Valerie
DS 2005

There is room on this earth for all of God's creatures..
next to the mashed potatoes

Janet P.
on 5/14/19 12:23 pm
Topic: RE: My labs are terrible for anemia, no vitamin A or Vitamin D, low B 12 low iron I need help

For the majority, the surgeon is good for one thing, cutting. I had one of the best DS surgeons in the country but his follow up sucked. I had to learn to be my own advocate and not rely on what the surgeon or his staff told me. I was taking bariatric vitamins sold by my surgeon. After a year I was so deficient they just kept added additional vitamins. I finally stopped the bariatric vitamins when I was fortunate enough to find Vitalady. She saved me.

Finding a primary doctor who was willing to work with me has helped enormously. Same with the right hematologist.

Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175

chevtow41
on 5/14/19 12:08 pm
DS on 11/11/14
Topic: RE: My labs are terrible for anemia, no vitamin A or Vitamin D, low B 12 low iron I need help

Most bariatric doctors are awful with nutrition and supplements, which is why some DS patients become malnourished, especially the ones who listen to their docs who say take a bariatric multi and some calcium and you'll be good.

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