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You'll be past it before you know it.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
Great news. I'll definitely ask about this. I've got pretty bad osteo (I've lost more than an inch in height). I tried reclast and that didn't work. We talked about Prolia, but it sounds like that's your next step.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
I do feel like a pair of pants are looser. So there's that. Thanks! I'll take measurements now. It usually is all about the scale for me. I need to get over it.
on 6/12/19 6:25 pm
I lost a few pounds the first couple of weeks. A year later it was150lbs. In this race the tortoise wins on a steady long term path.
Greetings all,
I wanted to provide my results after being on Fortero for severe osteoporosis at the one year mark but 1st I thought it would be helpful to give some background.
I had my DS almost 7 years ago four months after the surgery I was diagnosed with acute myeloid leukemia I went through a year of intense inpatient chemotherapy while I continued to try to balance my DS.
I was always very diligent with my vitamins following the Vita lady protocol although around the 3 year mark I began to have major foot and leg cramps that occurred with my calcium citrate. I went a few months not taking my calcium simultaneously unknown to me I had gone into menepause at age 52 with no symptoms probably due to the chemotherapy.
I had a dexy in 2017 that showed me mostly in the normal range with slight osteo penia in my hips within one year's time I developed full on severe osteo process in my spine and femur with a double wrist fracture.
In May of last year I started fortero which is the only drug that will actually build new bone all the others including prolia only solidify soft bones it is a shot taken daily and it can only be taken for 2 years due to risk of bone cancer.
I had a new dexi and an appointment with my Endo yesterday and I am praising Almighty God with the results in my spine I no longer have osteoporosis I am in the normal range with a 9% increase in bone growth. in fact I have recovered a quarter inch of the inch in height that I lost which is known to happen crazy right.
Also my femurs have improved slightly and according to my Endo they recover slower and will improve again next year. I still had another 9% increase in my femurs.
I am so grateful after one more year fortero the plan is to put me on prolia to solidify the bone growth I've received from fortero.
All vitamin levels are back in line but I share this because mine is a cautionary tale.
My calcium in PTH levels were always in the normal range while I continued to drift very quickly into osteoporosis so please please get a dexy scan
Thanks to Gal aka GAK for your help
blessings Julie
Take a deep breath. You just had MAJOR surgery and it will take your body to adjust. Every one is different so please don't try to compare yourself to anyone else. I guarantee that you won't be living on broth and protein drinks forever.
The first month is the hardest. The first thing that needs to happen is your body has to heal. Your primary focus should be water and protein. Just keep sipping. The general rule with the DS for protein is that by 30 days post-op you should be getting in 30 grams of protein per day. By 60 days post-op you're at 60 grams, and by 90 days (3 months) you should be at least 90 grams of protein.
I think we all have the feeling that "I'm going to be the first person in history who had the DS who never lost any weight". That won't happen.
Follow your surgeon's instructions for the first month.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
Let's be honest. "Normal" portions and food, really isn't all that normal anymore. Are chips, pizza, cookies, and other similar stuff normal? Only in the last 50yrs
Not unusual at all, you just went through major surgery. They put lots of fluids in you and likely still have post op swelling. It takes time, you didn't put it on in 2 weeks. Some people it falls right off (me luckily) others it takes a bit longer. Don't worry it'll happen. I'd also recommend only weighing at doctors office so you don't fall into the constant weighing daily and feeling like a failure if you didn't lose "X" pounds. Also take body measurements, I wish I would have.
