Sensible Vit D Injection Dose & What to Say @ Hematology Referral

Huneypie
on 10/11/13 2:33 am - London, United Kingdom
DS on 07/24/12

My PCP has said she'll get me a vitamin D injection but she doesn't know what's a sensible dose and she's concerned that it can become toxic if it gets too high.  In my July labs it was 23.4 and should be between 32-100.  I've been doing 50,000 iu dry vitamin D and recently upped it to 100,000 iu.

My PCP is also going to refer me to a hematologist next month due to my lowish ferritin.  Last labs it was 44 and should be between 20-380.  It's trending down and I want to catch it before it's below range.  Does anyone have any advice when I see the hematologist?  I need something persuasive to convince them to help as them doing nothing is still an option and oral iron isn't doing much for me.  BTW I do take it an hour away from dairy/nuts.

TIA kiss

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Member Services
on 10/11/13 6:38 am - Irvine, CA

Please keep us posted  

Huneypie
on 10/11/13 6:54 pm - London, United Kingdom
DS on 07/24/12

Will do.

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If you don't have peace, it isn't because someone took it from you; you gave it away. You cannot always control what happens to you, but you can control what happens in you John C Maxwell 
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MajorMom
on 10/11/13 7:24 am - VA

I want to say Dr Stewart here in the US used to give those. Maybe one of his patients knows. 600-something is tickling my brain.

--gina

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Huneypie
on 10/11/13 6:52 pm - London, United Kingdom
DS on 07/24/12

Thanks - I'll see what frequency I can get too as I'm sure that'll affect the dose.

Lowish BMI? See Lightweights Board! Lightweight Creed For more on DS see www.DSfacts.com
If you don't have peace, it isn't because someone took it from you; you gave it away. You cannot always control what happens to you, but you can control what happens in you John C Maxwell 
View more of my photos at ObesityHelp.comSleeve 2010 Dr López Corvala, Mexico. DS 2012 Dr Himpens, Belgium

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airbender
on 10/11/13 8:21 am

I have been getting the VitD3 injections for a couple years.  I would suggets 300K and test in 3 months.  I have used 300K, 450K and 600K.  it is not so much the dose as the dose and how often.   I am currently on 450K 3xs a year. 

what are you taking for iron?  you didn't post your iron panel so dosing will not be correct...suggest requesting the RX proferrin forte, i have been taking that for years, highly absorbable, gentle.  I take 2-3 tablets/day.  My hem/onc was going to put my on iron infusion before this RX...

Huneypie
on 10/11/13 6:45 pm - London, United Kingdom
DS on 07/24/12

I take 420mg of ferrous furmarate a day plus 1 x 60mg Tender Iron as any more gives me cramps.  I was told that that's the only iron that's available on RX over here although maybe the hematologist will have more options available than my PCP.

Hopefully my labs are OK below otherwise they're also available here https://dl.dropboxusercontent.com/u/33417203/Lab_Tracking.xls

Labs photo LabsPic_zps5d316e0d.png

 

Lowish BMI? See Lightweights Board! Lightweight Creed For more on DS see www.DSfacts.com
If you don't have peace, it isn't because someone took it from you; you gave it away. You cannot always control what happens to you, but you can control what happens in you John C Maxwell 
View more of my photos at ObesityHelp.comSleeve 2010 Dr López Corvala, Mexico. DS 2012 Dr Himpens, Belgium

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Huneypie
on 10/11/13 6:47 pm - London, United Kingdom
DS on 07/24/12

The comments are only available on the link as some of the ranges have changed from what's listed in the 2nd column.

Lowish BMI? See Lightweights Board! Lightweight Creed For more on DS see www.DSfacts.com
If you don't have peace, it isn't because someone took it from you; you gave it away. You cannot always control what happens to you, but you can control what happens in you John C Maxwell 
View more of my photos at ObesityHelp.comSleeve 2010 Dr López Corvala, Mexico. DS 2012 Dr Himpens, Belgium

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teachmid
on 10/11/13 9:48 am - OKC, OK
I take 100,000 per day and got a vit D injection in Dr, Keshishian's office last year. You could email his office about the dosage.

I saw a hematologist when my ferritan was in the 4-7 range for years. He advised me too get an iron infusion anytime it dropped down to 20. At last check, mine was 80 and dropping
     -Gail-
SW  257    CW  169  GW  165
  
Huneypie
on 10/11/13 6:51 pm - London, United Kingdom
DS on 07/24/12

I'll see if I can get hold of my consultant to see what he suggests re vit D.  I just wanted to have an idea of what a sensible number and thanks to Airbender, 300K sounds like a good starting point.

You must've felt awful with ferritin down at 4 - I just don't want to wait 'til I get there... we'll see how it goes.

Lowish BMI? See Lightweights Board! Lightweight Creed For more on DS see www.DSfacts.com
If you don't have peace, it isn't because someone took it from you; you gave it away. You cannot always control what happens to you, but you can control what happens in you John C Maxwell 
View more of my photos at ObesityHelp.comSleeve 2010 Dr López Corvala, Mexico. DS 2012 Dr Himpens, Belgium

I  my DS  

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