I think I "got" my answer Fri afternoon

I saw the NP Friday morning & she scheduled the biopsy for me while I was there.  I left at 8:45.  She came back right before I left to tell me that she wanted to talk to Anis (my heme guy & he is an oncologist) quick before I left to ask if he wanted to order any more imaging stuff, but asked for my cell # in case I had left before she got his answer.  I saw her talking to him on my way out.

She called me back at 5 hours later to tell me that he wanted to go ahead & order a CT scan of my neck & a PT scan right away so that he'll have all the info he needs for my f/u appt with him on Fri, Aug 4th that was scheduled to go over the results of the original CT scan of my abdomen & pelvis, along with a chest scan.  My guess is she talked to him & he decided to pull the results of the CT scan (it's in the same hospital system, he has electronic access) & chest xray, see what it said to guide him in his decision on whether to order more imaging.

He ordered the abd/pelvis CT scan b/c I had a sore spot on the right lower rib portion, which has grown a lot worse in the wk & 1/2 since I saw him.  The left side is now tender when you press on my mid/lower ribs (which is where your spleen).

So.  Isn't it that practice guidelines call for a PT scan either when you get a biopsy back or you have very strong clinical proof that it's indicated?  I'm guessing he didn't like the results of the CT scan & possibly chest scan that he had ordered . . . given the nightsweats, erractic fever (I actually had it when I was there on Fri), general fatigue, anemia of chronic disease, an ESR of 95, a CRP of 78.5, exercise-induced shortness of breath, masses that are on the supraclavicular node (which has a high rate of malignancy), and I've been losing weight again . . . I guess that's his reasoning for going ahead & ordering everything left so that we can have the cell type, stage, & discuss treatment options during the f/u.

Remember, this was the doctor that, 1.5 wks ago told me that he takes a conservative approach & rules out the most obvious first (that he thought I was iron-deficient anemic).

Yeah, I personally am 99% convinced.  It's what makes sense & everything else has been ruled out.

If I get my biopsy results early, from the surgeon, then I will post, otherwise I will post after my f/u appt on 8/5.

I hate to see you going through this.  It sounds like you have a great care system set up though.  

 

Keep your head up and when you need to talk these forums are great *hugs* You can get through this.

Absolutely!  Thanks :)

 Thinking good thoughts for you. I hope it all turns out okay for you. Hang in there.

Thanks, Inge :)  I like your new avie!

I'm glad they're doing a complete work-up so quickly so you'll have answers now. I continue to have you in my thoughts and prayers.

Thanks, me too

Thinking of you sweetie..xx

Yorkie xx

Thanks :)

waiting is tough, but it seems like everything is being ordered and they are following you.  please post when you have more info.  sending out prayers to you.....