Truth
Oops! With all due respect. I do NOT think this person is a troll but perhaps a non eduated WLS mother who is reaching out but is perhaps 1. fearful of going public with her surgeon's info 2. doesn't KNOW the lab results (how many people really do that haven't been through our o.H. survivor camp?).. 3. knows her son isn't taking vites and supplements and is avoiding the "I told you so" lecture that she undoubtedly received her entire life as his weight escalated.
Maybe some need handled with kidd gloves. I submit that this dude needs some seriously help and I for one am going on the hunt!!!!
Maybe some need handled with kidd gloves. I submit that this dude needs some seriously help and I for one am going on the hunt!!!!
Joyce Rny 2/11/03-> ERny 12/26/07-> Duodenal Switch 5/12/2010
www.dsfacts.com , www.dssurgery.com , & www.duodenalswitch.com
Here's what has happened with me. I weighed 452 pounds in March of '09. I weighed 428 pounds on the day of surgery may 5th of '09. I currently weigh 204 pounds. I too suffered a lot of muscle loss but it's coming back with excersize.
I had no other complications like your son does. All I can suggest is to find a surgeon who is familiar with the DS to treat him.
What part of the country are you in? I bet some of the people on this board can suggest a good surgeon. You and your son are in my prayers.
I had no other complications like your son does. All I can suggest is to find a surgeon who is familiar with the DS to treat him.
What part of the country are you in? I bet some of the people on this board can suggest a good surgeon. You and your son are in my prayers.
Mike
HW 452/SW 428/ CW 188/GW 190
While the situation seems to have gotten pretty bad, you can not blame the surgery, it seems the surgery is doing its part. It does however seem that the Drs and the patient are not doing their part. The doctor should have explained what is needed in terms of protein, eating and vitamins as well as follow up advice. If they didnt they are partially to blame.
The patient is however most responsible. It is your sons body and he is responsible to follow the Drs reccomendations. He must take care of himself. As soon as he started doing poorly he should have gone to his DR, all the way across town to his surgeon, or scoured the internet for information. He should have been on this site a year or two ago.
Get your son on here now and let people help him
good luck
The patient is however most responsible. It is your sons body and he is responsible to follow the Drs reccomendations. He must take care of himself. As soon as he started doing poorly he should have gone to his DR, all the way across town to his surgeon, or scoured the internet for information. He should have been on this site a year or two ago.
Get your son on here now and let people help him
good luck
Highest:454~Surgery:415~Current:227~Lost:227~Goal:220
I noticed that you've been a member of OH since last November ... a few months ... and that this thread represents your only posts here. Does your son have an account here? Is he able to post? What is his account name?
At 26 years old, he's certainly old enough to take responsibility for his health, and it's as good a time as any to learn that you really do have to become your own advocate when it comes to medical issues -- DS or not.
You have not replied as to his daily protein, liquids, and vitamin schedule, nor have you provided the results of his most current labs. You haven't provided the name of his surgeon nor the area of the country where you're living. More information is needed if you're truly seeking help.
Your son needs to step up, really. It's his life and his body, ultimately, no matter how much you love him.
At 26 years old, he's certainly old enough to take responsibility for his health, and it's as good a time as any to learn that you really do have to become your own advocate when it comes to medical issues -- DS or not.
You have not replied as to his daily protein, liquids, and vitamin schedule, nor have you provided the results of his most current labs. You haven't provided the name of his surgeon nor the area of the country where you're living. More information is needed if you're truly seeking help.
Your son needs to step up, really. It's his life and his body, ultimately, no matter how much you love him.
Ms. Cal Culator
on 5/24/10 10:40 am - Tuvalu
on 5/24/10 10:40 am - Tuvalu
You know...I'm a mom. I'm even the neurotic, over-protective mother of an only child...so I can see that you are coming from a place of concern...and love.
But your son was 24 years old and weighed 500 pounds and you're worried about his losing weight too fast?!? He was already racing toward an early death. He is currently 300 pounds lighter and he has some interesting complications, but I'm not sure how serious most of them are.
~Most of the time, diarrhea depends on what we are eating. What was he eating?
~Many doctors take out the gall bladder when they do the surgery. It OFTEN causes just the problems he's dealing with when rapid weight loss occurs...even with just diet and exercise. So they take it out after the fact and he moves right along.
~Doctor moved across town? Mine was 3.5 hours away...each way.
~Doctor looked at him and wondered what was going on? Are you saying that you think something is very wrong, but the doctor doesn't seem overly concerned?
~And this "I am looking for the truth on how really hard this is for someone. Someone who has difficulities in getting protein, vitamins, fluids, food, exercise and still hold a life! What does it mean? Why can't he take his vitamins? Most of us do and still have a life? What--or who--is keeping him from doing these things?
Did he live with you both before and after surgery? If so, what was a typical day (what did he do? what did he eat? did he get out much? does he now?) like for him before and what's it like now?
But your son was 24 years old and weighed 500 pounds and you're worried about his losing weight too fast?!? He was already racing toward an early death. He is currently 300 pounds lighter and he has some interesting complications, but I'm not sure how serious most of them are.
~Most of the time, diarrhea depends on what we are eating. What was he eating?
~Many doctors take out the gall bladder when they do the surgery. It OFTEN causes just the problems he's dealing with when rapid weight loss occurs...even with just diet and exercise. So they take it out after the fact and he moves right along.
~Doctor moved across town? Mine was 3.5 hours away...each way.
~Doctor looked at him and wondered what was going on? Are you saying that you think something is very wrong, but the doctor doesn't seem overly concerned?
~And this "I am looking for the truth on how really hard this is for someone. Someone who has difficulities in getting protein, vitamins, fluids, food, exercise and still hold a life! What does it mean? Why can't he take his vitamins? Most of us do and still have a life? What--or who--is keeping him from doing these things?
Did he live with you both before and after surgery? If so, what was a typical day (what did he do? what did he eat? did he get out much? does he now?) like for him before and what's it like now?
The truth about having the DS is that you have to have a strong will to survive. What I mean is that the patient (not his mother) needs to have a yearning to learn all they can about what is necessary for nutritional health, because very few medical professionals truly get it.
Your son's surgeon got him started, but it's not necessarily his responsibility to keep your son healthy. Many people travel halfway across the world to get the DS, never to see their surgeon again. A standard PCP can draw bloodwork and report the results to the patient, then work with the patient to suggest regimen changes...a good one anyway. Even nutritionists and dieticians often don't understand or refuse to grasp what DSers really need. That's where it takes the balls to challenge them and not accept the generic "wls paper" that they hand every patient. He can do it with you, but he needs to learn on his own how to keep healthy. The truth is that he needs to pull on his big boy underpants and take care of himself.
The truth is that the psychological clearances need to be more stringent, because if your son is as sickly as you're making him out to be, he's obviously lacking enough maturity or drive to be healthy with a DS. It can take years to bring certain types of malnourishment back to healthy levels, so don't waste another minute.
He needs to eat protein dense food - at least 100g in any way, shape or form. Being 1.5 years out, this should not be a problem at all, even without any protein drinks. He needs to build muscle in order to maintain muscle mass. That means he needs to exercise and weight train if he's as worried as you are about it. Others are right, though -- muscle mass loss along with fat loss is normal. He needs to drink 64oz of fluids in any way, shape or form.
He needs to take vitamins - LOTS of them. He needs to get bloodwork checked at least annually when he's healthy, but being in his current shape, likely every few months to see how the changes are benefitting him. If you browse through our board, about every 7th topic is relating to vitamins and keeping healthy. He needs to read these and learn. I'm 5 years out and still learn something on a regular basis, thanks to these inquiring minds. He needs to learn from our vitamin guru's that are living the life, not reading it in a book. Have him reach out to Vitalady and Andrea U out here. They suffered malnutrition problems and had the drive to learn on their own how to dig themselves out. These two are my personal heroes.
Your son's surgeon got him started, but it's not necessarily his responsibility to keep your son healthy. Many people travel halfway across the world to get the DS, never to see their surgeon again. A standard PCP can draw bloodwork and report the results to the patient, then work with the patient to suggest regimen changes...a good one anyway. Even nutritionists and dieticians often don't understand or refuse to grasp what DSers really need. That's where it takes the balls to challenge them and not accept the generic "wls paper" that they hand every patient. He can do it with you, but he needs to learn on his own how to keep healthy. The truth is that he needs to pull on his big boy underpants and take care of himself.
The truth is that the psychological clearances need to be more stringent, because if your son is as sickly as you're making him out to be, he's obviously lacking enough maturity or drive to be healthy with a DS. It can take years to bring certain types of malnourishment back to healthy levels, so don't waste another minute.
He needs to eat protein dense food - at least 100g in any way, shape or form. Being 1.5 years out, this should not be a problem at all, even without any protein drinks. He needs to build muscle in order to maintain muscle mass. That means he needs to exercise and weight train if he's as worried as you are about it. Others are right, though -- muscle mass loss along with fat loss is normal. He needs to drink 64oz of fluids in any way, shape or form.
He needs to take vitamins - LOTS of them. He needs to get bloodwork checked at least annually when he's healthy, but being in his current shape, likely every few months to see how the changes are benefitting him. If you browse through our board, about every 7th topic is relating to vitamins and keeping healthy. He needs to read these and learn. I'm 5 years out and still learn something on a regular basis, thanks to these inquiring minds. He needs to learn from our vitamin guru's that are living the life, not reading it in a book. Have him reach out to Vitalady and Andrea U out here. They suffered malnutrition problems and had the drive to learn on their own how to dig themselves out. These two are my personal heroes.
Valerie
DS 2005
There is room on this earth for all of God's creatures..
next to the mashed potatoes
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