Hi..how is everyone
Ok so my schedule is HELL right now. I finally was able to get 5 consecutive hours of sleep with only one phone call to wake me up today ..YEAAHHHHH. The last 4 days it was no more than 3 hrs at a time before having to get up and do something. I am trying to get my schedule in order so i can balance things. I have been able to maintian my weight for almost 4 weeks now. I'm really happy that I can maintain I know it sealry still but hey every day is a good day that i stay where i need to. I need to schedule a follow up with my surgeon so we will see what they say. So how is everyone doing? ANy new issues ? Is anything good happening out there?
Hi Amy and Delaware,
I am here lurking most of the time. Since Doug lives out in the country they haven't had Comcast or Verizon come in with high speed internet so I have to use dial up and don't like to be on the computer a lot during the day for fear someone will call and he will miss the call.
I am awake now at 522am and have been for 3 hours when I was woken up by Doug's mom falling to the floor. She got up to use the pot, thought she was on it and went to sit and missed. Doug's niece spent the night so she was able to help Doug get her back up. I was in the bedroom trying to get a good night's rest. After all the noise and excitement I haven't been able to go back to sleep. This scared his mom too and we had to give her some of the liquid morphine for the pain and something to calm her down so she would go back to sleep. Doug is now resting again. The Hospice nurse said that him and I are going to have to work in shifts, but that isn't going to be possible because it takes 2 people to get her to the pot sometimes. So I told him it is going to have to be like taking care of a new born and when she is sleeping we will need to sleep/rest except at night when we will have to stay awake all night. This is harder then I ever thought it would be. I guess this is God's plan for me right now because there is no way I could take care of her and work at the same time. There is no way that I would allow Doug to do this all on his own either, he is having a really hard time accepting this, taking care of himself and her and still trying to make me feel loved. I know I am loved by him without a doubt.
Please keep Doug, his mom and their family in your prayers, this isn't going to be easy and is only going to get worse since this is just the beginning.
Hope everyone has a great week, I am here just lurking.
I am here lurking most of the time. Since Doug lives out in the country they haven't had Comcast or Verizon come in with high speed internet so I have to use dial up and don't like to be on the computer a lot during the day for fear someone will call and he will miss the call.
I am awake now at 522am and have been for 3 hours when I was woken up by Doug's mom falling to the floor. She got up to use the pot, thought she was on it and went to sit and missed. Doug's niece spent the night so she was able to help Doug get her back up. I was in the bedroom trying to get a good night's rest. After all the noise and excitement I haven't been able to go back to sleep. This scared his mom too and we had to give her some of the liquid morphine for the pain and something to calm her down so she would go back to sleep. Doug is now resting again. The Hospice nurse said that him and I are going to have to work in shifts, but that isn't going to be possible because it takes 2 people to get her to the pot sometimes. So I told him it is going to have to be like taking care of a new born and when she is sleeping we will need to sleep/rest except at night when we will have to stay awake all night. This is harder then I ever thought it would be. I guess this is God's plan for me right now because there is no way I could take care of her and work at the same time. There is no way that I would allow Doug to do this all on his own either, he is having a really hard time accepting this, taking care of himself and her and still trying to make me feel loved. I know I am loved by him without a doubt.
Please keep Doug, his mom and their family in your prayers, this isn't going to be easy and is only going to get worse since this is just the beginning.
Hope everyone has a great week, I am here just lurking.
Deanna
Christ in you the hope of Glory!!!!
Deanna, I know how hard this is. You are right it will only get harder. I took medical leave as soon as Bob was put into Hospice Care. When he started to get bad I put a lounge chair next to his bed and that is where I slept for several months. It was hard to get anything done for he wanted me in the room with him 24/7. I would do it all over again . I was so blessed with the time I got to spend with him. Let his Mom talk and enjoy every minute with her. God will give you the strength you need. You really need to request for an aide. It will give you guys some much needed time off. Remember Doug is going to go thru alot too. Just be there for support. Sometimes there is no need to say anything. My thoughts and prayers are with you. See you lighter. Joanne
Hi Joanne,
Thanks for the words of encouragement and the prayers. Hospice came out on Wed morning and did another evaluation on Hazel and told us that her health is declining and her cancer is progressing. We filled out an application for the Hospice House in Denton, MD, but they only have 3 beds, so she is on a waiting list. They were able to get us a lift chair, we just need to go and get it. Once we get that it will be easier to get her up and to the pot. Doug and I have a deal that if we say something mean or hurtful that we both know it is from lack of sleep or just fear of what we are going thru. He knows I am here for him and that I am not going anywhere. He did get out for about 40 minutes today and ran into Seaford for some things, but he told me today he hates to leave her because he is afraid of what might happen while he is gone. I feel so bad for him. He asked me the other day where I am getting my strength and faith from and I told him that I truly believe that if God brings me to it He will carry me through it. This is just another one of those "Footprints in the Sands" and when I look back there will only be 1 set of footprints because God is carrying me right now. He has been talking a lot lately about going to church with me, my minister has been here twice to see Hazel and Doug and Doug really liked him, so if he does decide to come hopefully he will find some peace there.
Again thanks for the prayers and I will keep everyone updated.
Thanks for the words of encouragement and the prayers. Hospice came out on Wed morning and did another evaluation on Hazel and told us that her health is declining and her cancer is progressing. We filled out an application for the Hospice House in Denton, MD, but they only have 3 beds, so she is on a waiting list. They were able to get us a lift chair, we just need to go and get it. Once we get that it will be easier to get her up and to the pot. Doug and I have a deal that if we say something mean or hurtful that we both know it is from lack of sleep or just fear of what we are going thru. He knows I am here for him and that I am not going anywhere. He did get out for about 40 minutes today and ran into Seaford for some things, but he told me today he hates to leave her because he is afraid of what might happen while he is gone. I feel so bad for him. He asked me the other day where I am getting my strength and faith from and I told him that I truly believe that if God brings me to it He will carry me through it. This is just another one of those "Footprints in the Sands" and when I look back there will only be 1 set of footprints because God is carrying me right now. He has been talking a lot lately about going to church with me, my minister has been here twice to see Hazel and Doug and Doug really liked him, so if he does decide to come hopefully he will find some peace there.
Again thanks for the prayers and I will keep everyone updated.
Deanna
Christ in you the hope of Glory!!!!
Deanna,
In hospitals they have bed alarms so if osmeone gets up alarm goes off and they know to check on the person . Im not sure if they have them for general public i should think so with the number of people who get cared for at home. Do you think if you got this you might sleep a little more? Are you using a baby monitor? that might help too.
In hospitals they have bed alarms so if osmeone gets up alarm goes off and they know to check on the person . Im not sure if they have them for general public i should think so with the number of people who get cared for at home. Do you think if you got this you might sleep a little more? Are you using a baby monitor? that might help too.
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