Totally Bummed...

Hi everyone - Well I went to my neurologist today to discuss the progress of this neurological issue I've had for the past 8.75 weeks. As I posted some time ago, they still aren't sure if I have Guillain Barre or CIDP - anyways - all I know is I have no muscle strength and my hands and feet tingle/go numb 24 hours a day. Anyway we discussed my plans for the surgery today and he hit me with the bad news. I have to put my surgery plans on hold until we complete a course of treatment for this and see if it clears up. I know in my 'head' that this is a logical thing. But in my 'heart' I was (and am) so prepared to complete my journey and get to the other side. Well just needed to vent a little. Thank you all for being here. Carla

Carla, wow I feel so badly for you. I know exactly what a struggle between your heard and your heart it must be. But you know that the doctors are correct. It is better to be safe than sorry and the most important thing is to stay positive. You will beat this (whatever the hell it turns out to be....) and you will have your surgery. Just need to be patient. Obviously it is not your time right now but it will be. Take care and keep that chin up

Hi Carla! I am soo soo sorry to hear the news. I know how ready you are to go to the "other side" as you have been shadowing me with my journey. I will keep praying for you and hopefully you can get better through treatments and then eventually get back on track. I know it is hard but "stay positive", they say everything happens for a reason. I am sending some good wishes and hugs your way Hon! Take care and Thinking of you! MaryJo

Carla Everyone's eyes in the medical community are upon us, they are all waiting for us to fail because this is so effective, however so permanent. As a result all the docs have become very conservative about going ahead with this surgery if there is the least bit of a problem. It WILL happen for you, I know it will. Don't give up and keep going for your dream. Vent to us any time you need....we are here for you!! love Cheryl