chrones disease diagnosed

Dulcilady
on 9/6/08 5:59 am - Howell, MI
Hi,
I had roux-en-y surgery 9 years ago.  It has been an amazing journey for me.  With the support of this surgery, my family and supportive friends I have been able to lose 120 pounds and keep all but about 15 pounds off.  There is never a day that goes by when I don't thank God for giving me a new life.  Last week, I was diagnosed with Chrones Disease.  It is located in my small intestine.  My specialist said it is NOT a consequence of my WLS.  I am wondering if anyone else might be living with this condition and how they are doing.  One of the concerns I have is that chrones causes malabsorbtion and we already have that due to the surgery.  I am just beginning to gather information about this condition but am expecially interested in the combination of the Chrones with the Roux-en-Y.  Any help will be immeasurably appreciated.
Sharna
Janel B
on 9/6/08 6:04 am - Oakley, CA
Hello,

I have ulcerative colitis, which falls under the same umbrella of Inflammatory bowel disease that Crohns disease falls under. Mine has been in remission though, for which I am thankful.

I'm assuming you are under the care of a gastroenteroligist? He should be able to answer all your questions about this disease, and how it affects wls patients.

I wish you the best, and hope and pray for quick healing for you.
Janel  
Dulcilady
on 9/6/08 6:52 am - Howell, MI
Thank you Janel for your encouragement.  I hope you  remain in remission with your Inflammatory bowel disease.  I, too, will be praying for you.  Yes, I am under a Gastro Guy's care.  My appointment is the first week in October.  I am sure I will get lots of good information from him.  Thanks for responding to my post.
Sharna
alexrichiemama
on 9/6/08 9:04 am
Hi,

If you don't mind me asking, what were your symptoms that led to your diagnosis?  Did you have the UC before wls or after?  If you had UC before, how did the wls affect it?  What kind of treatment did you have that put it in remission.  Any help would be appreciated. Thanks
Dulcilady
on 9/7/08 5:16 am - Howell, MI
Hi,
Thank you for taking time to respond to my posting.  I was just diagnosed this past week.  I had a lot of pain and heaviness in my lower abdomen.  Some diarreah, but I thought I must have eaten something that I shouldn't have.  Went to my family dr. and she did blood work, sent me for a CT scan and colonoscopy with a gastroenterologist.  The CT showed a thickening at the end of my small intestine, which usually is how it shows up on a scan.  The gastro doc told me before the colonscopy that he was going to try to get into my small intestine to do a biopsy to check for it.  He did, and the biopsy came back positive.  I don't have my first app. until the first week in October, so I don't know what they will do at this juncture.  I will probably check in with my Bariatric Surgeon too.   Just beginning to find out info. so I don't have the answers yet - but I will!!!!  Have a great day.
Sharna
Jodi W
on 9/6/08 10:03 am - SIMI VALLEY, CA

HI SHARNA,
DON'T PANIC, THEY ARE COMING UP WITH WONDERFUL MEDS FOR CHRONES DISEASE. I WAS TOLD I HAD IT 2 OR 3 MONTHS AGO ALONG WITH ULCER IN MY 4 YEAR OLD POUCH.

THEY ALSO TOLD ME IT WASN'T DUE TO THE WLS. I HAVE HAD UC FOR MANY YEARS AND IT'S ALL ONE BIG HAPPY FAMILY. I WAS RECENTLY PUT ON LIALDA FOR THE CHRONES. I WAS ALSO TOLD IT LOOKS LIKE I HAVE FIBROMYALGIA AND THE MEDS THAT THEY ARE PUTTING ME ON ALL SEEM TO HELP THE WHOLE MESS. I AM JUST STARTING OUT SO HANG IN THERE AND HOLD OUT HOPE.


A LOT OF THE IBD'S AND ARTHRITIS CONDINTIONS ARE RELATED TO EACH OTHER AND YOU GET ONE AND LOT OF THE TIME YOU GET THE FIBROMYALGIA ALONG WITH IT IN LATER YEARS.


JUST THINK POSITIVE AND GOOD LUCK WITH IT ALL.

TAKE CARE AND ENJOY YOUR WEEK END,

  
   
             
Hearts JODI    Hearts                 

Dulcilady
on 9/7/08 5:28 am - Howell, MI

Hello Jodi,
Thanks so much for the encouraging e-mail.  I hope you are doing well with all of your immune disorders.  Is your ulcer from the crohns or is it a "regular" stomach ulcer?  The Gastro-doc told me I have ulcers in my small intestine.  I wonder if they are the same, or if there are different types.  I'm just learning a little info. and have lots more to learn.  I am sorry you have so much going on with your health.  You sound like you have a very positive attitude, which I KNOW is going to serve you well.  Thanks again for sharing your medical information with me.  It sounds like we're going to do just fine!  Have the meds caused you to gain any of your weight back?  I've heard that can happen with the steroid family.  Any suggestions about how to prevent that from happening? Have a great day.

Sharna

1.  I can identify 2 issues that consistantly cause me to emotionally eat.  My mother, being in mid-stage alzheimer's came to live with my husband and myself 1 year ago, when my father passed away.  During this period we have been building her an 800 sq' apartment attached to our home, and renuvating parts of our home to accomodate that addition.  She is a delight and I love her but many changes have happened throughout this year to all of us.  The stressors change daily and sometimes take me totally off guard.  I am no longer in control of my life - but rather, my life circumstances have control over me.  I cope by emotional eating.

Because my dear husband works very hard on his day job, comes home and works on the building projects, works on more of the building on the week-end he is TIRED!!!  He is the most wonderfull, loving, uncomplaining, unselfish man.  I am so thankful for him and for all he has been doing on my mother's behalf.  He does all this and has kidney insufficiency himself.  I thank God his health has apparently not suffered from this grueling schedule.  We are about 2 wks. from completion!!YIPPEE

He does need rest and goes to bed around 8:30 most nights.  I, on the other hand use the late evenings to unwind from my day.  I feel selfish to say how lonely my evenings are.  I feel guilty for being upset that my darling husband NEEDS to sleep.  I cope by emotional eating.

2.  I don't know what would happen if I faced my feelings instead of avoiding them by over-eating?  I am not too good at facing feelings at the moment.  My emotions seem to always take over.  When that happens, my brain seems to shut down.  "comfort first then think about what I should have done" has usually been my m.o.  I know I should have better support services in place for myself at these times. 

3.  I am always clear that I am eating from emotional hunger.  Just as you said - my emotional hunger flares at lightening speed and before I even think I find myself eating.  Yesterday, while trying to find how to get your first article I was very frustrated with my beginning computer skills.  I have to laugh now, because I would keep trying to find them and in between jump up and fix myself another whole-wheat ritz cracker with low-fat peanut butter.  Since surgery I usually eat something much healthier than before, but the automatic emotional eating has not stopped.  Think I'm in the right workshop?

cabin111
on 9/6/08 11:39 am
Sorry to hear.  The only thing I can say is what others have said.  The newest medicines for Crohns Disease are just amazing.  I have heard they are some of the best breakthroughs in all of medicine.  It's a good time to be alive.  Brian 
Dulcilady
on 9/7/08 5:06 am - Howell, MI
Hi Brian,
Thank you for responding and giving me encouragement.  Yes, we are blessed to be alive in today's world full of medical marvels.  I'll keep on keeping on.  Have a great day!
Sharna
KITTYKAY
on 9/10/08 5:56 pm
Though I don't have Crohns I do have Multiple Sclerosis. I was diagnosed two years ago but I think I have had it since high school (16 years ago). I had it before my RNY and was very scared while getting the surgery it would flare up. But I do think with the loss of the 35 pounds my weightloss has really helped. Now I can say that the first year of diagnoses is the scarest. I was freaked! But I can promise you it will get better. There are a lot of things out there for people like us with Chronic Diseases. If you need anything hit me up on my page. I also would suggest Dailystrength.com, a support group. Support Groups are the way to go.

Kitt
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