UPDATE: 2 surgeries and a lot of pain

 Hi Everyone... just wanted to check in and catch up with you all. I had my hernia and rny repair on Dec 8th at Tempe St. Luke's. I was feeling okay once I got home but started vomiting really bad the Tuesday after release... tried to deal with it but finally gave in and went to the ER.  They kept me overnight and then Dr. S decided to take me back in to surgery and thank goodness he did! It was a long 5 + hour surgery and when I woke up I was in the most pain ever. I am still dealing with a lot of pain and discomfort, mostly due to the g-tube and the jp drain. I spent 18 days at Tempe St. Luke's and it wasn't very pleasant. Now I am home but on home healthcare checking on me. I can't drink or eat much but have a picc line so I can get my nutrition via TPN (i.v.).  
It's really rough...trying to move around and do things but energy level is low as well as moods. One minute I feel okay and the next I just want to sit and cry.  I know...I'm a big ol' baby but those tears are real.  Sunday night my hubby called 911 because I couldn't take the pain anymore and they took me to the ER.    Neither one of us could take it and he hates to see me in pain. Anyways, CT scan showed nothing abnormal so they gave me some pain relief, re-hydrated me  and let me rest. 

Hoping that was the last abdominal surgery for me.... for some reason my body forms scar tissue and adhesions really fast. As soon as I am able, I want to start coming to the support meetings.  

I know there is more I would like to include about the care I received at the hospital(not the surgeon) but I just don't have the energy to sit here.  All I will say is that I'd score it a 2.5 out of 10!!!

Hang in there!  Sounds like you had a rough one. 

 I am so sorry....  when did you have your surgery?  how far apart were they?   I will Pray for you...  so sorry!

 I had my first surgery on Dec 8th, then back in again on the 20th.  It's still a challenge to get through some days!  THANKS!

Hey friend!  Soooo sorry you've had a rough start but hopefully you're on the mend and looking forward to a happy and healthy future?!!!

Push your protein and fluids and all will hopefully fall into place

Hello... still not feeling so great here. Eating and drinking are still not happening much but I still have 24 hr continuous PTN to keep me going.  What a life.......

Wow!  What in the world happened to you friend?  What's the prognosis?  How long do you anticipate that kind of treatment? (PTN?  TNP?  PTN?  LOL!  It confuses me!)  Are you able to eat regular food? 

Crummy deal for you!  .....  Having drawn a short straw myself with complicaitons from a revision, I totally feel for you!!!  Often it's important to get 2nd or even 3rd opinions if your surgery expectations have gone south.

Take care!!!

Joyce

Joyce,
Wow you are having complications?  I know you had issues losing too much weight but at a support meeting you said how great you were doing just low iron.   Are you still having iron issues?   I know that was an issue for you when you wanted to get some plastic surgery.  Hope that has improved.   Did you end up getting infusions? 

I hope you get your issues resolved, I know you are wanted to get plastics done.  I am thinking about getting a body lift soon.  I need to email you to get some details on that.

Take care,

Rose

I'm actually feeling pretty good right now.  I've worked VERY hard swallowing truckloads of vites and pushing protein to get my labs passable for surgery.

So, my dilema is:  Do I use my surgery pass for plastics and risk poor health because I keep the Erny as it is?  Or, do I use it on fixing my ERny so that I can possibly have plastics (and be healthy again) in the future?

Med specialist(s) have recommended getting revised (fixed).  I'm leaning that direction but am in the early stages of  testing with a surgeon in California. 

You'll LOVE having a body lift!  That's a transformation that actually seems to change personalities!  To quote the nurse at Dr. Mazaheri's office:  "It's the inner skinny stepping out for the first time!"  ....  I'd  be happy to answer whatever questions I can to help you out.

You take care too,

 having a really bad day and cant deal with the pain... dr told me when I was in the ER that nothing I say makes sense. I feel like there's no one that can help and just so frustrated. I cant eat, drink, take a walk. I have this picc line (iv) bag with me 24 hours a day and if I want to take a shower I am free for a few minutes. I cant enjoy a long hot shower because after I get out I have bad shakes, sweats and my glucose levels dive.  WTF?  Tired of being tired