perforated pouch

Hello all, On June 10, my pouch was perforated by an undiagnosed ulcer. the perforation also pierced the stomach wall, and as you can imagine, i was one sick puppy. I spent 15 days in hospital, including 3 in ICU. Am home now, have still one drain (from my intestine) and am being fed in the PIC line (I think that's what it's called) overnight. Anyone else have a perforation, or know anybody who did? Am truly desperate to speak with anyone who's been through it. Thanks in advance, Heather COllins [email protected]

Ughhhhhh. I am so sorry about your ordeal. It sounds like a long recovery. I'm sorry you are going thru this. I can't help you with any advice--I've never known anyone to have this happen. God bless

Heather, Oh my!!! I hope you are feeling better soon. You will be in my thoughts and prayers. Thanks for sharing. Big Hugs, Dru

Hi again, Thanks ladies, for your kind wishes and good thoughts. I had the last drain taken out of my intestine yesterday (Thursday). So now all I have is the PIC lines in my arm for the overnight feeding and bloodwork. I am feeling better; I'm still kind of worn out and tired feeling, but I have to make myself get outside to walk arund and get exercise. My surgeon said yesterday that I need to get back to a more normal routine, and said I can drive if I want to. I haven't heard from anyone who perforated, adn I'm not surprised. My doc said one of the members of the surgical team has been doing a lot of research and he's been unable to find a case like mine, so he'll be writing about it, apparently for presentation or publication in med journals. Great. I knew I was special but jeesh, why'd it have to be like this?! My biggest challenge right now is eating. I am still afraid that if I eat it will somehow irritate the patch on the ulcer and make it happen again. My doctor said no, that I need to start eating more and of course, to eat slowly and take my time. They can't do another endoscopy for about a month, because if they did it now, it could potentially tear the area (I guess they put air in the pouch when they scope, and that pressure could be harmful as I am still healing.). The challenge then will be if I have a stricture: if I do, and they try to dilate, the risk is that it will tear the area. I think this is how this whole hting started. I had an ulcer from December until May, and was taking prevacid and rinatidine for it. When my gastro doc did a scope on May 6, the ulcer was gone, so he dilated my stricture. My trouble REALLY started then: I ended up in teh ER two days later in agony, and from that point on, went downhill until I was essentially not eating or drinking because it was too painful. I was in contact with the gastro doc, telling him this, and he said that pain was likely constipation and presecribed something for that. Obviously, it wasn't constipation, it was an ulcer. I am pretty upset that he didn't see me sooner and do another scope as I had such pain, but what can I do now. On the day of the perforation, I was also severely dehyrdated and extremely malnourished, which complicated things. I had several other complications including developing a massive blood clot in my stomach cavity. It's been a nightmare. But I'm getting better. Thanks ladies, for listening. I really appreicate your kind words and, especially, the prayers. I believe in teh healing power of prayer. Take care, Heather

Oh I hate you are going threw this.My prayers are with you.Take care of your self. pat memaw