having a rough time
I don't think my rough time is related to my surgery. In fact, I think I would be much worse off if I hadn't already lost 47 lbs.
I've had Multiple Sclerosis for the last eight years. And I've been morbidly obese. . but I managed. This April, I had to take off work due to health problems, and I just haven't bounced back.
Now, I am testing +++ for the antibodies in Lupus! My whole body hurts. My joints hurt, and I just hurt all over.
I was doing so good. . . I was exercising every day and walking 3 to 4 days a week. Now, I can barely manage a shower. I am just exhausted and my body just hurts.
Now, I am facing a life with BOTH MS and lupus. I also think that some of my tests for Hughes syndrome have come back positive. I'll find out for sure when I see the rheumatologist tomorrow. (Hughes syndrome is closely associated with lupus)
I'm sorry for being so whiny. It's just rough.
I'm so tired of being in pain 24/7. I seriously am.
Thanks for letting me whine and vent. I just hope that I feel better soon. I was much happier when I was exercising and feeling like I was getting my life back.
Hey Leslie, I have been keeping you in my thoughs and prayers, seems like this is a really busy season for major maladies. A good friend of mine (23 years old) has been diagnosed with an inoperable brain tumor, and a another really good friend's daughter (16 years old) has been diagnosed with Polycystic Ovarian Fibrosis. And her husband is going in for a Heart Bypass. I guess when it rains it pours.
Man, what a blow. But your doing great with your weight loss and I think that could have some benefits in the long run. I hope what ever they can do to make you feel better, they do. I haven't probably felt pain like yours but after I had my daughter I was in cronic pain up until I lost my first 20 or so pounds. I was so depressed at being in pain constantly. I really wish you all the best and I hope you feel better soon. Keep us informed and you can complain all you want.
Shannon
Dear Leslie,
Please don't ever feel you are whining when you share your struggles here. We are all here for you and many prayers will go out for you. I don't know the specifics about what you are dealing with, but I know that the symptoms can often get better. I think that even though you are unburdening your body of this excess weight, it is still a traumatic experience to change your food intake so dramatically, burn so much fat so quickly, just so many changes. It doesn't surprise me that things would flare up from all this. I just imagine that as time goes by and you adjust and stabilize, everything will get better and better for you. Anything can happen, but this is what I will pray for you, and prayers and love can be very powerful. I hope your pain is eased and you feel better each day. ((((((cyber hugs 2 you)))))))
Love,
Sue
hi leslie,
i'm so sorry you are having it so rough. you've made this huge change and now it seems like your body's betraying you. i wonder if you are near a teaching hospital? sometimes they have mind/body clinics that help people with chronic conditions deal with pain thru meditation, guided imagery, stuff like that. maybe you know all about this already?
i'm thinking of you.
susan