anyone have Intracranial Hypertension/PTC???

Hi. I am curious if there is anyone here that has this wonderful disease? Its know as IH orPTC - pseudotumor cerebri. This is a serious neurological disorder in which high cerebrospinal fluild (CSF) pressure within the skull causes unbearable headaches, swelling of the optic nerves, and often results in loss of vision or blindness. I just wanted to find out if there were others here with this disease. Thank you very much, Barb