Update Post Scope
Well I went back to Ft Lauderdale Monday and checked into the hospital. My dehydration was so bad they had the iv pump running at 300 m/l per hour from the moment I got there. They did the scope on Tuesday about noon. It was scheduled for 8:30 but as I am laying on the scope table waiting, they called from the sleepy docs (not going to attempt to spell it) and said they had an emergency and could we reschedule.
When they did the scope they found that my stoma was open to about the size of a pencil lead. They couldn't get the scope to go down at all. They did the balloon and reopened it and checked Oscar (my pouch) for holes or defects. He seemed to be in perfect working order.
They kept me again Tuesday night due to the dehydration issue not being resolved even after being on continuous iv for 24 plus hours. I came home yesterday and am so tired all I want to do is sleep. The doc says to listen to my body and let it lead for now. So I do a little and lie down sip sip sip eat and start again.
Still not feeling 100 percent but I am determined to make this work. I have not been sick since I have been home although the desire to is very high. This is the heads doing versus the body. I have gotten so used to throwing up after I eat that it is now engrained in me. It is a battle that I am determined to win.
Thanks for listening and letting me vent.
Kat
Kat,
I can so relate, I had 3 scopes myself! After my 2nd one I was very nauseated, for about 2 weeks pretty much 24/7. I went to my local health food store and they recommended Ginger. I bought these things called Ginger Trips, they are chewable (I suck on them). They helped alot and I gave some to my friend who swears by them as well. Might be worth a try.
Good luck!
Cary
Welcome to The Stricture Club! Sorry you're a member.
I'm soooo glad you've gotten it figured out now though. Knowing what's wrong with you is most of the battle. Most stomas don't want to stay open after that first dilitation though, so be aware that you may have to go back for another scope *knock wood*, but it's really not so bad.
Vent anytime. That's why we're here, love.
Julie
Hi Kat
I had the same problem as you...couldn't keep food down and sometimes not even water. I went for my dilation Friday and they said my opening was 5 mml and they were able to dilate it to 8 mml. I have to go back in 2 weeks to have the procedure done again. Apparently they can only open it up so much in one treatment. I was able to eat a little something yesterday and today without puking!!! YEAH!! As you said, you get so used to it that you don't know what it's like to eat anymore! Good luck to you.
Sue McD