Stressssssssssssssssss

I so wanna eat. Rich got the hematologist office to fax over the results of his bone marrow biopsy. I haven't seen it yet but he was reading it to me and it is full of words of immeasureable length. One of them being something called myelofibrosis. Which means that the blood marrow is being replaced with connective tissue. Looking it up, it sounds pretty bad with not a great prognosis and talk of variety of treatments up to a bone marrow transplant. However, what is keeping me sane right now is: 1) he apparently unbeknowst to him has had an enlarged spleen and reduced platelets for some 10 years now and is still asymptomatic, 2) myelofibrosis often comes from something else like: prostate cancer, Hodgkins lymphoma, non-Hodgkins lymphona, Padgett's disease, Gaucher's disease (Rich doesn't have that one - that was the Mayo Clinic genetic test), lupus, sarcoidosis, etc. The list is long. So, really we don't know what is causing the myelofibrosis and if it is something treatable that should bring that under control or at least stop it from getting any worst. That's my theory and I'm sticking to it until the hematologist tells us otherwise. I ate some cheese instead of anything else and now I'm going to drag the exercise ball out and focus on it instead of the kitchen. Kathy

Hang in there Kathy! It sucks to have some information and then not be able to talk to anyone about it. I hope you get to talk to the hematologist soon! Angie

Wow, Kath... You and Rich are in my prayers. Extra big hugs, Tracy