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(deactivated member)
on 2/7/10 7:22 am
Topic: RE: Pre-Anniversary S.O.S.
Hi, My name is Crissie and I'm a foodaholic.

I need the support and inssight of people who understand my predicament and my past.  I used to be on this board everyday until2 patients beat me almost to death.  Tore my shoulder almowt off.  Since then I have been forced to retire on disability, had my hip replaced 5 (yes 5) times, been diagnosed with a rare congenital disorder called EDS affecting only 1/40,000, almost lost everything I owned waiting on disability, and my Mom was diagnosed with a rare form of breast cancer known as inflammatory breast cancer.  She is almost through with tx and is cancer free.  I was told yesterday at the Cleveland Clinic that I am at the outside edge of help for my condition.  Due to my crapstorm and my lack of proper coping mechanisms I have gained back 60 pounds of the 300 I had lost.  My Ortho doc says he wants me to drop 50 pounds rapidly and he is writing to my insurance to ask for a revision of my RNY.  In the meantime I am drinking protein and nothing else for the last three days.  I am trying to get back to goal weight.  Mom has only got two more weeks of radiation and I think I see the end of the tunnel.  It's probably the damned train.)

Weight day of surgery:370 (lost down from 500)
Lowest weight after surgery:183 (Doc upset I'm tall, goal was 195)
Current weight:255
Goal weight:195

Co-morbidities day of surgery:Asthma, arthritis
Co-morbidities remained or have reoccured despite surgery:Asthma, Arthritis(Didn't know I had EDS and that most of problems were related to this)

ove as always Crissie



reenieb
on 2/6/10 10:18 pm
RNY on 03/08/04 with
Topic: To Your Health
Hi - I had to share this. I woman whom I respect and admire (she goes by the handle "Vitalady") recently answered my question on the Main Board about the various ways in which the R-en-Y's are performed; I'm trying learn as much as I can so that I can understand why I'm gaining weight - here is her response, it's remarkable how little I knew going into this! I hope this helps:

You know about the partitioning of the stomach to create a small pouch, right? The older procedures just ran a row of staples across to create the division. Of course, by "a row", I mean whatever the doc does, 3 rows, 4 rows, 6 rows, 8 rows, and most docs also oversew. Then intestine is attached to pouch, etc, but we're only talking pouch here, right?

OK, when it's transected, they again do 2 pairs of rows of staples (most of the guns fire 2 rows simultaneously). They cut between the two pairs, so 2 rows hold the pouch side together, 2 rows hold the stomach side together. There is a space between the two stomachs now. My doc sends that hunk between to pathology, but other docs do different things with it.

When it is not transected, it's much like stapling your lips together, slimy fabric to slimy fabric. They never grow together or seal. The staples are holding them together and keeping the partition intact. Staple line disruption can occur at any time (some within 2 weeks, some by 18 months, mine was at 5 yrs) or never. It's a risk.

When it IS transected, you have two adjacent raw edges held together, so they heal to each other and bond. (That applies to both the pouch segment & the stomach segment, of course). If you cut your finger, it is definitely open, but it heals back together invisibly, you know? Raw edge to raw edge. The risk of leak is in the first few days, but then, we are at risk of leak from any of the attachings. And if lea****urs, it will most likely be at one of the intestinal connections. However, once you are past the immediate post-op period, that risk is past.

So, the main benefit of transecting is that you will likely only have ONE surgery. Personally, I still had acid & discomfort before revision, and not much after, but then, I'd guess my staple line was compromised just slightly early on. My doc starred transecting all of them in 96, but I was a 94, my husband a 95, so we were not.

If there is a choice, I'd always recommend transecting. It can be a disaster to have a staple line disruption. It can be painful, as well as the inevitable weight gain, and that general sensation of failure. And what if you do not have the right insurance to fix it?

But that is my very biased opinion.

*****


Let's assume that we all start with 300" of (small) intestine. We don't, but we need to have a figure, so that's it. From the pix you've seen of RNY/gastric bypass, you know there is a left side, right side and tail of the Y. The "junction" of the sides is the determiner if a procedure is proximal or distal.

The original intestine comes out of the old stomach and carries the digestive juices that are manufactured in the old stomach. This piece is called the bileo-pancreatic limb because it carries bile from the gallbladder and pancreatic juice from the pancreas. There is no food here.
This is the LEFT side of the Y. This is the portion that is bypassed.

The alimentary limb connects to the pouch and only carries food, but cannot digest or absorb. This is the RIGHT side of the Y.

The tail of the Y is where both elements mix together and where digestion (if any) and whatever absorption will occur. This is the part that is still in use and is also referred to as the common channel.

If the junction of the Y occurs in near proximity to the stomach, it is said to be proximal. If the junction occurs as a far distance from the stomach, it is said to be distal. That said, neither word describes any actual measurements of anything, so the meaning is in the mind of the person speaking of the procedure. What is proximal to my doctor is considered distal by another.

Generally speaking, ALL RNY people will have to supplement at least the basic 8 elements*, though in varying doses. We are all missing the stomach and its normal digestive function.

Truly distal (with a lot bypassed, and a short common channel) people need to supplement in larger volume, but will achieve and maintain the better weight loss over time. Proximal (less bypassed, longer common channel) people still need to supplement the basics and can reach a reasonable weight, but after 2 years may have to work a little harder to maintain their goal weight.

My doctor measures what is in use, not what is not. So, in my case, I have a 40" common channel, then 60" was used to reach the pouch. The bypassed portion is then ABOUT 200".

Most procedures performed are measured backwards from that. The doctor will bypass 12 to 72", use 60-80" for the right side of the Y, and the common channel will be 100-200".

* the basic 8
protein
iron
calcium
A
D
E
zinc
B12

These need to be supplemented in specific ways to help absorption.

We also malabsorb SOME fats/oils and complex carbs.

We never, ever malabsorb sugar.

Some will have to supplement potassium or magnesium, but not everyone.

Dream as if you'll live forever, live as if you'll die today.
KimberlyH
on 2/6/10 1:16 pm
Topic: Snow..ARGGGG....
Actually its quite beautiful....posted some pics of it on my profile...stay safe and warm everyone!!!

"To accomplish great things, we must not only act, but also dream, not only plan, but also believe"  ----"Anatole France"

"Joyously grasp the ties that bind you, for they lead straight to the heart"---"Wm."


Kimberly...

pammy157
on 2/6/10 1:49 am - colchester, CT
RNY on 03/30/04 with
Topic: RE: Battan Down The Hatches....
ahhhhhh here in CT we will be lucky to even see a flurry.
right now i am glad i don't live in DC or NJ anywhere near there they are suppose to get hit pretty bad. at 8am  while watching the news i heard that DC had 22 inches with many more hours of snow coming.
pammy157
on 2/6/10 1:47 am - colchester, CT
RNY on 03/30/04 with
Topic: RE: posting machine
Reenie you keep on beliveing in us marchers. be thahnkful that the militant isn't one of us!
sometimes people feel so strongly about what they belive in that they forget there are other opinins that are just as important and people who support their opinions just as strongly.
the block will help. i'm not sure if i would have blocked her cuase i would have wanted to read the stuff she'd written if anything it would renforce that you know what you are talking about. as long as you kinow what do you care about what she thinks?
intelligent people reading her posting i'm sure will read right though the tough guy stuff and make their own opionions.
dont let her get the best of you. its not worth the stress from an on line bully.
deep breaths
breath in peace
breath out negativity
AND remember the marchers of 2004 are the BEST!
pammy157
on 2/6/10 1:42 am - colchester, CT
RNY on 03/30/04 with
Topic: RE: posting machine
Judy stop you are not as big ads a cow. you are a wonderful person who want health just as much as the rest of us. an dyu work very hard at it too.
i agree with reenie 200% that it sounds like your innards aren't hooked up as good as they were at first. i think you should look into wha tshe suggested about goign to your doctor an demanding they do the tests needed to find out what is wrong then get it corrected.
its not our fault that this stuff happens. so don't take the blame.
why it happens to some and not to others is a mystery.
i dont' belive that its anyones fault that it does that. cause we are all different. doens't mean i did something right and mine stayed ok cause it could fall aprart tomorrow. wihtout anything happening to make it fall apart.
remember the energy you put into getting the surgery.
\remember the fight you did to get it done.
now pull that energy and fight back and use it to get this issue fixed.
you can do it i know you can!
and yhou've got all of us in your corner fighting the fight right thre with you.
reenieb
on 2/5/10 9:36 pm
RNY on 03/08/04 with
Topic: RE: I'm alive and Not well!
You are my hero...
Dream as if you'll live forever, live as if you'll die today.
reenieb
on 2/5/10 9:36 pm
RNY on 03/08/04 with
Topic: RE: Pre-Anniversary S.O.S.
Aw, sweetie - I hate that you're feeling so down on yourself? I've asked you this before, but I'll ask again - can you get an endoscope done to determine the size of your pouch and stoma opening? You and I sound like we are struggling with the same issues - I really, really believe so much of this is mechanical, Judy! Please try to consider that these are medical issues and not a matter of your lack of willpower! Won't you please at least go to your doctor or WLS and ask for a endoscopy to specifically determine the size of your pouch and stoma anatomy? Then, when you have those answers, you will be much more informed so that you can make good, solid decisions. No matter what, you are not alone. Thank you so much for answering my post - it means a lot! Love you, sweetheart - Maureen
Dream as if you'll live forever, live as if you'll die today.
Ms.Judy
on 2/5/10 9:45 am - HOSCHTON, GA
Topic: I'm alive and Not well!
I am just checking in to let you all know I'm still alive!  I'm still trying, I'll never give up, y'all!

God has given me this day to use as I will. I can waste it or use it for good. Today is very imporant, because I'm exchaning a day of my life for it.

Ms.Judy
on 2/5/10 9:42 am - HOSCHTON, GA
Topic: RE: posting machine
I'm proud of you, you have done awsome! I'm sure you've seen me on facebook and can tell I'm big as a cow!!

God has given me this day to use as I will. I can waste it or use it for good. Today is very imporant, because I'm exchaning a day of my life for it.

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