OT: My Michael update
i am so sorry that i have not updated sooner-
again, thanx so much for all of your prayers--please continue as we are not totally out of the water!
michael came home from the hospital last thursday nite- i had a bit of a challenge securing all of his meds at that time but we are straightened out now. his mobility was still very poor when he came home but now he can just about walk without any assistance- we used a walker for a few days-(packrat margo triumphed!!! i had saved mine from 1994!!!). we do have a 4 leg cane and will take it with us when we go somewhere.
since his right arm is still virtually useless; he has dumped two full cups of coffee and two dinner plates off of the table without even trying- if he turns to the left his shoulder, of course, follows him and so does the arm! he has learned to eat pretty well with left arm and finally realizes just keep the right arm in his lap-
yesterday, he insited on walking down to the basement- i went in front of him- great idea- if he falls so will i but hey!-well it was ok but he paid for it later in the evening with sore legs-
i have learned how to give his injection daily-works well- and today he is starting to wean down on the steroid-hopefully it is doing the trick on the swelling on his brain.
the thought of cancer has not been totally ruled out-the infections seemed to be more important to battle at this time- the swelling on his brain was utmost; in turn hoping to regain his mobility.there have also been some very slurry speech episodes but they seem to be behind us. after 3-4 weeks on antibiotics; the drs will test again--
this morning is his first follow up appt with primary dr-need to discuss his "hic burps" that can just take over for no reason...also any additional occupational therapy?
tomorrow morning we go back to the dentist for second impression for his dentures-and next week we have an appt for consult with oral surgeon-that will be so wonderful to get done for him...
there were some very dark hours this past weekend-one nite we were up til 5 am talking(which was good but) becuz he was still weepy and thinking he would die soon...he so worries about leaving me with the house and the burdens of our bills,etc....oh-and my procrastination ( which is an art i worked hard to perfect!!!!) has finally gotten to him to the point that we had a screaming fit friday nite!so;i am working on that!
i ,on the other hand, am exhausted and gained 6 pounds while he was in the hospital....ppl keep telling me to take care of myself-all well and good- i think back to when my kids were small and would nap-do i shower or nap too? well- he won't nap!!!!so i have to be very cautious as to what he is doing and where he is! tho now that he is more mobile i am not quite so worried...
it has been so wonderful to be able to come here and read even when i didn't respond! thank you, family!
Margo,
I'm so glad that things seem to be improving. How scarey this is for you. When my son was 4 or 5, he had an infection of the brain lining. For no apparant reason, he would clutch his head, scream and then pass out.
I'd tell you to take care of yourself, but you know that. You also know that we are here for you and care very much about you and Michael. Please continue to let us know how things go.
Much love and big hugs (well, the hugs ain't as big as they used to be),
Connie
WOW, What an ordeal you are going through. Hang in There & glad to hear
Michal is imporving on a daily basis. It sounds like you still have a long
haul, but at least you have him home & you can see an imporvement.
That sure helps. Keep us poted & do try to keep yourself Healthy as well.
I know easier said than done.
Oh Well prayers still out to you both, in any case.
Marilyn, the Bearlady 
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