PAULA, YOU THERE?

Has anyone heard from Paula and how she is doing since her last message on here? I pray that she is ok. Joanne

Hi Joanne, Thanks for thinking about me. Basically, they (my various docs!!) are running more and more tests, sonograms, CT scans, and blood and more blood panels. Everything comes back abnormal. I am very weak, especially in my feet, legs, arms and hands. Sometimes I try to walk to the bathroom and all of a sudden my muscles just give out. Writing and typing on the computer is slow and painful. I have so many doctors trying to agree on what to pursue first. On my bone scan 7 ribs were broken, some in 2 places. Also, there are areas suspicious for metastatic breast cancer on several ribs that broke and one tiny area on the right as well. I never even considered to worry about return or spread of my primary breast cancer. I don't "feel" it like I did with the original breast cancer. My pcp requested the wrong tumor marker blood test...instead of 15.3 for breast cancer, she ordered 19.7 for gastric, pancreatic cancer. Wouldn't you know the latter test is high. My oncologist is puzzled about that one. Now that has to be worked up. The breast cancer tumor marker has been pending for like 6 days. My pcp is worried about that. It is difficult to walk out and get in and out of the car and then in and out of the doc office. (Sorry to be whining) My endocrinologist is puzzled about all the endocrine/metabolic abnormalities....of course especially the carnitine deficiency. She really knows her subject (endocrinology) but appears to know NOTHING about RNY GB. She started me on a trial high dose of oral carnitine and coenezyme Q1 0, plus more Vit D3. Next visit I will be admitted if I need IV carnitine. I promise to update as my problems are detected and addressed. I'm very positive still and know that God, my son and daughter, and my Feb 2004 friends are very supportive. Please keep me and my family in your prayers. My daughter is very stressed about everything. God bless you all, Paula

My heart breaks to hear of all that you are going through and you are always in my prayers. I will pray for God to uphold you during this time, surround you with the peace that passes understanding, and give great wisdom to your physicians. Please keep us abreast as often as you can and know that there are many of us here who care deeply about you and your daughter. Love, Julie