Information that needs to get out

Thanks for replying. I have a carnitine deficiency, my creatine level is fine. All these words start looking alike...don't they. Carnitine is essential to fat metabolism. It transfers fatty acids into the mitochondria of cells...mostly muscle and heart. In there the fatty acids are metabolized into energy for the cells. Without the carnitine there is inadequate energy to keep the muscles and heart working at full speed. Often carnitine deficiency is not diagnosed until there is sudden cardiac death. Scary stuff. I am going to see the neurologist too as my peripheral neuropathy has gotten worse. If it's not one thing it's another!! God bless you and your family. Your February family will be here waiting to hear updates. Paula

Noelle - I am so sorry to hear that this has happened to you. Was your doctor checking your blood levels for B1, B2, B6, etc? Your symptoms sound so much like what can happen when the various Bs get too low. I am sorry it took so long and did so much damage before you found an answer. I can understand why it took so long to post about it, you had your hands and life quite full dealing with it. You are in my thoughts and prayers that this is reversed and you will be on your way to a very healthy new you. Sandy

Thank you so much for taking the time to share with us and let us know what sorts of complications we may need to watch for. I've been blessed since surgery and my heart breaks to hear of your difficulties. I am so glad to hear that your physician seems to be informed and helpful. I would also like the link to the Mayo report if you find it as I have a friend who just recently underwent surgery 2 months ago and I'd like to pass it along to her. Know that you and your family will be in our thoughts and prayers constantly and we'll be believing for better times ahead. Julie

Hi Noelle - thank you so much for finding the courage and strength to share your story with us. It is so unfortunate that this is happening to you. Are you going to get progressively worse? I know it's still early for you and you probably have a million and a half questions. Your attitude is healthy and that will take you far. Have you thought of posting this on the main board? I wonder why this is one complication that I was not warned about? Take care and keep in touch. Denise

Noelle, A while back, Katherine posted with some of these issues as well. She had a lot of pain along with the neuropathy. I haven't seen her post in quite some time and hope she is doing okay. I truly feel for you in this situation and am glad this didn't go on for too long before you got help. I'm hopeful they can get your body going again and find ways to keep you nourished. Please keep us posted on your progress. We are here for you. Linn

Noelle, I hope you will recover completely and quickly. Thank you for sharing the problems you are going thru and what to look for. I definitely will keep you and your family in my prayers. It has to be a very trying time for all of you. Hugs, Mary

Noelle, this is very scary. I'm glad you got some help before you were totally paralized. Please keep us updated on your health. Thank you for sharing the information. This surgery is still so scary to me. I wonder what I might be in for in the future. I imagine any health issue will always want to be linked to our WLS, even if it would have happend without WLS. Debbie