UPDATE ON DH

Hi everyone. I just got back from the hospital. Most of my update postings will be at night cause I am at the hospital from about 10am to 9pm. He felt 100 times better after he got 2 units of blood last night and today. When I left tonight he was getting 2 more. Again tonight there is good news and bad news. The good news: the babesiosis is gone. His blood test showed 0% parasites. The bad news: the babesiosis may have left some damage. We don't know yet. He does in fact have lyme disease and hepatitis A. They are not really concerned with the mono. He is still yellow from the jaundice. Now for the really bad news, all the docs are getting together for a conference (5 docs in all) because it is looking more and more like a tumor on his left side. They are doing all kinds of tests that are elimanating other possibilities. It seems this mass, over the last 2 days, has developed a pocket of what they think is blood surrounding it. Scar tissue does not do that. Tumors do. They are going to do a laproscopic biopsy instead of a needle. There is some good news if it is a tumor. We could be thankful to the babesiosis because if he never had it, we would not know about the potential of a tumor. Also, if it is a tumor, it is caught early. There is no protruding from his side so it is still small. They did check to see if it was anywhere else and so far it looks like it is contained there. So basically, we have very little hope that it is scar tissue. We are determined to fight this. I won't let this win. but this is so damn hard. it is hard to keep hope, hard to show hope, hard to hold my head up for him. He and I walked for a while around the nurses station, holding hands. Last week he couldn't walk that. But how can my sweetie take anymore bad news. I know he is scared. I can see it in his eyes. His face is yellow, thin, and tired. It breaks my heart. Now through all this, Dan is still a man through and through. He still manages, through all this, to grab my ass when he can. As for me, I know you all said that I have to take care of myself but right now, he takes presidence over anything else. I can handle a few days of not eating right, or not getting protein. It isn't going to kill me. Now I can't respond to all of you individually but you all have raised my spirits tremendously. You all are the family I don't have. Some of you are my mother, some my sister and some my brother. Then some of you are my aunts, neices, nephews. I have never had a family so big before, nor so many people to care so much. A few of you had asked for an address to mail Dan a card. That is amazing that someone would do that and I know it would raise his spirits to know that so many care about him. So if you would like to send a card, here is the address, but remember, you don't have to. I know you all love us. Daniel Williams PO Box 373 Exeter, RI 02822 I love you all. Please, all that I ask is that you keep the prayers and good thoughts coming. They really help. Some of you have reminded me that God is with us. You're right. I lost that fact in this hell. He is there. I know He is. But I believe we are being tested, not punished. We will pass that test. We are strong together. I love you all, Joanne

I will keep u in my thoughts, I am glad there is some good news for Dan.. I hope everything works out, we r all here for u... Stay STRONG & keep your spirits up !!!! Deb

Thanks for the update, Joanne. I was wondering what you've found out. I'm a firm believer in knowing what you're up against, and I'm so glad your medical folks are taking such good care of your fella. I've been thinking about you lots, and will continue to think good thoughts for you both. Linn

Hello. Our family is praying and hoping for a positive outcome. Keep your chin up and let your husband know that you are there for him. Best Wishes! Jill

Tell my Weight loss brother-in-law that I have alot of people in Philly praying for him. Now about your not eating, I understand you don't feel like eating but carry around some jerky or cheese sticks in your purse so that you can nibble here and there. I don't want you fainting or something because you haven't eaten. Love Annette