Where I've been (Warning: Long and boring)
I addition to the links that Jen listed, I found great info at this site:
http://pbcers.org/whatis.htm
I'm at stage 0-1 right now. The odds are that I'll outlive the disease progression if the medication works for me. Otherwise I'm looking at a transplant in 7 to 40 years.
RobinNJ
Hi Robin!!!
I am sorry to realize that you are experiencing all this unfortunate issues... I hope God will let you have the strength to go over them...
I am trying to come back too... this is a wonderful place where you can find really nice and loving people to support you... Please know that I am here if you need me... [email protected]
My best wishes for you and your family...
Alejandro from Guadalajara Mexico