Where I've been (Warning: Long and boring)

Hi all, I've been absent from the board because I didn't want to burden you all with my depression. The preliminary diagnosis of "PBC" or "Primary Biliary Cirrhosis" is correct, the biopsy proved it. My primary doc is looking for a specialist to follow me. PBC is a hereditary, auto-immune disease of the liver. It's incurable. I've been railing at G-D about this. I work myself to the bone over the last 2 years, dieting, getting approval, surgery, etc. to get healthier, to be here for my kids - watch them grow up - only to be diagnosed with an incurable liver disease. IT SUCKS!!!!!!! I don't want to eat right, I don't care if I lose another #. I'm SOOOOOOOOO ANGRY!!!! But I got a Valentine from my SP, she missed me. She wondered if I was OK. It made me realize how much I need you guys. So I'm back and sharing (venting). Thank you SP. RobinNJ

Hi Robin, I'm so glad you came back! We are here to listen to bad and good. We all need this board for support no matter what it is. I'm sorry to hear about your disease Is there anything they can give to stablize your condition? Remember we're here for you! My prayers are with you. Hugs, Anna

Oh Robin, I just want to scream when I hear things like this You're right, it's just not fair. But sweetie, we are here for you. So don't stay away. Sending love and hugs, Ronna

Hi Robin, I am sorry you are going through these trials right now. Just wondering ... the liver is a "replaceable" organ. Would a transplant work? My cousin had an incurable kidney problem and his mom gave him one of hers. Ok so I just did a google search ... check out these links http://www.mayoclinic.com/health/primary-biliary-cirrhosis/DS00604 http://www.mayoclinic.com/health/primary-biliary-cirrhosis/DS00604 http://www.surgery.usc.edu/divisions/hep/livernewsletter-therapyofprimarybiliarycirrhosis. html http://pennhealth.com/ency/article/000282.htm God Bless! Jen

Hi Robin~ It's good to see you! I'm very sorry you are going through this! My thoughts and prayers are with you! Kay

I am so sorry this has stuck it ugle head up. What a bummer! We are just happy you are posting again. We always want to hear what is going on. I am not great about posting myself. So I understand but now you need support even more. You will be in my prayers and thoughts. I can understand about the eating it is a backlash from what you have just gone through. You know now the eating is even more important. I know you just want to go eat pie, cake, fried chicken, gravy and say to hell with it all. Oh, or is that me talking. I had a moment like that today!!! I didn't but I sure wanted to. So I can fully understand where you are coming from since the news. You did not say what they do for this liver problem or do you know yet? Keep venting and if you get angery well that is ok with us also. You have a right to be up set and out of sorts right now. Hang in there and take care! Please keep us informed. Joyce

Robin I am giving you a and a hug. I missed you and am glad you are back...Please know we all care and hopefully something can be done to help your situation. Anger is a normal feeling so please don;t beatr yourself up... Love ya...Chris

Hey Robin: I am so, so sorry. I just do not have any other words aside from that. Where IS Ewing, by the way? I just might have to come to you and treat you to lunch... All my love, Jersey

Ewing is a suburb of Trenton, a long way from you. We should arrange to meet at a mall and go shopping. Robin

So sorry to hear about your diagnose. Your right it is not fair. You'll be in my thoughts. Carly