hiya eveyone. my comp messed up on me, so sorry if this shows up twice. i got a few requests for an update on jeremy. he is doing pretty good. his birthday was on july 17th... he is now 22 years old. he now has a neon orange mohawk. we've learned not to care what people think anymore and we just want to be ourselves. he is still dropping pounds, but we do not have a weight on him yet. i have a meeting with medicaid next monday morning... they want to take away his wheelchair. while i'm there, i will mention that we need to get a hoyer scale to get him weighed. on his brithday he sat at the edge of his wheelchair and almost stood, however, things have not been as great since then. we've had troubles with the bed and him sliding out of the wheelchair. he was sitting up 3 times a day for about 45 minutes each, now he hasn't sat up in almost a whole week. we're giving it a try tonight and hope he can handle it. there will always be setbacks, i just pray that they become smaller. for every day he lays in bed, it takes two days to get up. it's been a year and a half. his therapist thinks there is nothing else to be done here at home, so we've called a few facilities and we're waiting to get information. he wants to walk so bad and i want him to walk more than anything. i know he can do it, but the stress with people and circumstances are killing us. we're strong and we will win this fight... i hope it's soon.
love,
robbi