Addison's Disease?
Hello all,
I haven't been on in a while. I just got diagnosed with Addison's disease. I was wondering if anyone else has this. I am almost a year out from surgery. I was told their is no way to tell if it was do to the doctor clamping off an artery and leaving the clamp on to long intern killing the supply to the adrenal glands, or if it was just a fluke thing that happened. Over the last six months my life has been miserable.
I have had low blood sugars been diagnosed with hypoglycemia, about 30 blackouts, migraines, so tired I can't drag myself out of bed. I can sleep and feel like I never slept, I had a seizure the other night, keep losing weight, appetite what so ever. I have to force myself to eat, weak muscles, low blood pressure, and the list goes on. Just standing up my heart rate raises to 150 bpm without doing anything. My blood pressure is always at 72/65.
After having the seizure I couldn't go to sleep even though I was tired. I was scared what if i don't wake up again. I have two little boys and I couldn't put them through that. I saw the doctor and finally after six months they found something. I have been told my pancreas needs removed, I have heart problems. Nope it's none of those things.
The doctor started me on medicine. I was just wondering if anyone else has this and how has your life been since you have been diagnosed. The doctor said as soon as the medicine kicks in I should start to feel normal and all my symptoms will go back to normal. Also that JFK had this. Only 1 in 100000 people get it.
I have just been really depressed. I am happy they found something finally but scared because I only know what I have read, and don't know anyone with this to ask questions. If anyone has it please respond. Thanks
I haven't been on in a while. I just got diagnosed with Addison's disease. I was wondering if anyone else has this. I am almost a year out from surgery. I was told their is no way to tell if it was do to the doctor clamping off an artery and leaving the clamp on to long intern killing the supply to the adrenal glands, or if it was just a fluke thing that happened. Over the last six months my life has been miserable.
I have had low blood sugars been diagnosed with hypoglycemia, about 30 blackouts, migraines, so tired I can't drag myself out of bed. I can sleep and feel like I never slept, I had a seizure the other night, keep losing weight, appetite what so ever. I have to force myself to eat, weak muscles, low blood pressure, and the list goes on. Just standing up my heart rate raises to 150 bpm without doing anything. My blood pressure is always at 72/65.
After having the seizure I couldn't go to sleep even though I was tired. I was scared what if i don't wake up again. I have two little boys and I couldn't put them through that. I saw the doctor and finally after six months they found something. I have been told my pancreas needs removed, I have heart problems. Nope it's none of those things.
The doctor started me on medicine. I was just wondering if anyone else has this and how has your life been since you have been diagnosed. The doctor said as soon as the medicine kicks in I should start to feel normal and all my symptoms will go back to normal. Also that JFK had this. Only 1 in 100000 people get it.
I have just been really depressed. I am happy they found something finally but scared because I only know what I have read, and don't know anyone with this to ask questions. If anyone has it please respond. Thanks
Hi Coastiegal,
I too have been diagnosed with addison's disease while researching weight loss surgery. I have found a wonderful support site for this disease. It is Addison's Disease.net. It is a support site founded by someone with addison's disease and the information that others share with each other has been really helpful to me. I was diagnosed in May 2008. I am still learning to balance my disease with proper rest and hydration and of course the right dose of medication. Hang in there coastiegal. Be patient with yourself, and check out the support site, I hope that it helps you to know that you are not alone. I know this has helped me tremendously. I don't know if this is out of line, but I am also a christian and I would like to pray for you and your family. Thanks
I too have been diagnosed with addison's disease while researching weight loss surgery. I have found a wonderful support site for this disease. It is Addison's Disease.net. It is a support site founded by someone with addison's disease and the information that others share with each other has been really helpful to me. I was diagnosed in May 2008. I am still learning to balance my disease with proper rest and hydration and of course the right dose of medication. Hang in there coastiegal. Be patient with yourself, and check out the support site, I hope that it helps you to know that you are not alone. I know this has helped me tremendously. I don't know if this is out of line, but I am also a christian and I would like to pray for you and your family. Thanks
I had surgery 02/08/08 so only 8 months out. I have tumors on the adrenal glands. The tumor on the right is 8.8 cm and the one on the left 4 cm. They are removing the one on the right and going to watch the one on the left.
They have to remove the adrenal gland with the tumor and were talking about removing both. Your note was the first time anyone had mentioned adrenal glands.
Anyone else with a problem
They have to remove the adrenal gland with the tumor and were talking about removing both. Your note was the first time anyone had mentioned adrenal glands.
Anyone else with a problem
My oldest son who is 38 and had RNY 5 years ago developed it about 3 years out..He has seizures ALOT among other things and his life is medicine as his adrenal glands are not producing ,,, I dont know all the things he takes ,,,,so many but he had certainly suffered greatly. What do they have you taking ?
Hugs
Shirley
Hugs
Shirley
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