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Fibromyalgia comes with some pretty severe co-morbidities. Depression, Arthritis, Chronic Fatigue, memory problems, anxiety disorders. Sleep Apnea, Irritable bowel Syndrome, GERD.
Your immune system is comprimised with fibromyalgia, so I got sick for 6 weeks at a time and lost jobs because of it.
Then there are the side effects of pain medication. It makes you tired and stupid. I screwed up a lot of paperwork.
Of course, I also have uncontrolled diabetes, high blood pressure.
You have to list every little thing. It also depends on your age. I'm 57 and I think they decided I was too old to be rehabilitated.
I don't know anyone who has "just" fibromyalgia.
The best part was getting on Medicare so I could get good medical care and bariatric surgery. I'm hoping to go back to work. The income from SSD sucks!
Get an attorney! you don't pay until you win your case and they know just what to say and what not to say.
Good luck with your search!
I'm not even going to mention my obesity. By the time I get an actual hearing date, I won't be too bad anyway, and it actually has very little to do with why I can't work. If they DO ask, I will certainly tell them that it makes it hard to lose weight when it hurts to move, stand, sit.....everything! If I get any sort of pain control, then I'm zonked out and go to bed.
I'm going to start now and write down all the things that cause me problems during the day, all the pains and difficulties on a daily basis. Somewhere I found on a website the symptoms of fibromyalgia (it's about 4 pages long) and I checked off all the things that I have bothering me. I've saved it and will reprint it and take that with me. It may help.
Thanks again for the help and encouragement. I will deep this forum informed of my progress.
Bonnie
on 10/4/09 3:33 pm
Hi,
I have been on SS Disability for fibromyalgia for over 4 years. Your friends who told you that it is "stupid" to try for disability because of fibromyalgia don't know what they are talking about!
When you go for the hearing make sure to have your lawyer (or you if you speak) stress the affects that fibro symptoms have on you and how it makes it impossible to work a job. Express thoroughly the fatigue that comes along with it, the depression, the effects of the pain meds., how difficult it is to do anything for long periods of time like sitting (especially with your back pain), stand (especially because of your ankle) and so on and so on. MOST IMPORTANT OF ALL, DO NOT TELL THEM THAT OBESITY IS ONE OF YOUR "ILLNESSES"!!! Obesity is not considered an illness under the SS disability terms. If they ask about being obese, tell them that you are obese because of the inactivity or slow down of activity caused by fibromyalgia & your other ailments.
If I think of anything else I will let you know, but for know I will keep you in prayer for a successful outcome. And tell your friends to stop with the negativity, you have enough of that. If they want to share anything, tell them to either share your pain (because you got plenty) or some money ('cause you haven't got enough)!!
My daughter has fibro and degnerative disk, and migrane headaches. She was turned down twice and went in for a hearing and it was granted. THEY want you to give up so DON'T.
My daughter got a lawyer thru the free lawyer project.
Good luck and even though it is stressful try to fight them, they really want you to give up.
Good luck and keep us posted.
www.fibromyalgiatreatment.com/
Dr R. Paul St Amund.I had his book before.
It talks abou****ching all the foods, tooth paste etc etc. I do not do any of that and still get benifts.
Also can go on fibrohugs.com it is a good site.
Any questions can email me direct at [email protected]
Good luck, I know it's a hard process to go through! It's hard because there are people who abuse the system and there are people who genuinly need the help who have to fight tooth and nail to get it.
You can follow my journey at mandaschange.blogspot.com
