Recent Posts
Topic: RE: Fibromyalgia and SS Disability
Hello Bonnie
I am currently reciving SSI and have fibro as one of me disabilities but unpon my annual review (after WLS) it was stated that I was able to return to work. I am worse after WLS but that is all that they saw was my weight lost. I have just had my appeal hearing and I presented my evidence along with statement from my freinds who has seen me condition worsen and my hubby went with me and gave a statement. I had to do the same thing in the begin to recieve my benfits, he went to the hearing and family and friends provided statement in person and written. I will pray that you get the needed result.
Angee
I am currently reciving SSI and have fibro as one of me disabilities but unpon my annual review (after WLS) it was stated that I was able to return to work. I am worse after WLS but that is all that they saw was my weight lost. I have just had my appeal hearing and I presented my evidence along with statement from my freinds who has seen me condition worsen and my hubby went with me and gave a statement. I had to do the same thing in the begin to recieve my benfits, he went to the hearing and family and friends provided statement in person and written. I will pray that you get the needed result.
Angee
Angee~Loving life as a losser !
Topic: RE: Just checking in How is everyone
thanks for the tips! yes, meringues are perfect. and I will try and make them with splenda/truvia. There's also a low carb flourless chocolate cake I can make (3 minutes in teh microwave). But having stuff there ready to go is my best alternative.
thank you, and best of luck in your recovery!
~ toad
p.s. yes. no goodies for anyone this year around teh holidays. :+)
thank you, and best of luck in your recovery!
~ toad
p.s. yes. no goodies for anyone this year around teh holidays. :+)
~ toad
http://toadlily-gamer.blogspot.com/
http://toadlily-gamer.blogspot.com/
Topic: RE: Just checking in How is everyone
I hear you about having temptations around and I've just had to really limit what I have on hand. Family always expect goodies from me but I've just had to tone it down. I'm telling everyone this Christmas not to expect much (I broke my leg so good excuse there, altho I wouldn't recommend it to anyone else!)I'm just going to make some healthy type breads which I can't eat.
Anyway for suggestions how about different flavored merangues, make them ahead in little "kiss" shapes. I think they keep pretty well. Also instead of the carmel apple maybe just apple slices with a low fat or low sugar caramel dip? Just take things that you normally see as comfort food and figure out how to make it lower in calories or use healthier carbs in snacks like baby food fruits in cake or cookies instead of some of the oil. There is also a cake made with diet soda from weigh****chers, try googling it. I sure understand the tiredness because I'm trying to regain strength after being in bed for 6 weeks and it's so hard, I just want to sleep all the time and any little work and I'm exhausted. Best of luck to you!
Anyway for suggestions how about different flavored merangues, make them ahead in little "kiss" shapes. I think they keep pretty well. Also instead of the carmel apple maybe just apple slices with a low fat or low sugar caramel dip? Just take things that you normally see as comfort food and figure out how to make it lower in calories or use healthier carbs in snacks like baby food fruits in cake or cookies instead of some of the oil. There is also a cake made with diet soda from weigh****chers, try googling it. I sure understand the tiredness because I'm trying to regain strength after being in bed for 6 weeks and it's so hard, I just want to sleep all the time and any little work and I'm exhausted. Best of luck to you!
Topic: RE: Just checking in How is everyone
snowy here. :+)
http://toadlily-gamer.blogspot.com/2009/10/snowy.html
I am sad, and could use some advice. I suffer from fibromyalgia yes, but I first got CFS in 1998 (Finally diagnosed then, but started getting ill in 1995'ish). Anyway, some days, I am so fatigued (Usually after doing too much the day before), walking to the kitchen is hard (about 30 steps oO), standing up long enough to wash dishes is hard. Things like lifting my hands far enough up to look in kitchen cabinets is too hard. Holding a phone up for longer then 30 seconds?, well, yeah , you get the idea. I lost 2/5 of my blood supply one time after a surgery when they had sent me home. It kinda feels like that. Barely able to talk.. walk etc.. I was fading out with 911 on the phone. Anyway. Probabaly more info then you needed to h ear. :+)
After about 26+ hours of this on Thursday evening, with no relief, and no medications can help with this, I simply have to have some relief. The only thing that helps is carbs. (I am on a low carb diet). Raising my blood sugar is the only distraction and relief I can get. In fact, when I went to the cardiologist for surgery pre-req last Wednesday (Hence the collapse after. I had to drive 2 hours, and it was a grueling day), he found my BP was 128/30 on my right side, and 100/60 on my left. He got concerned so we are doing both a nuclear and echo test next week. K, sorry again for trailing off.
Anyway, as I said, only raising my blood sugar is the only way I have found relief. So yeah, I went and had a caramel apple. the whole thing. O, yeah. and it was coverred in milk chocolate. Yes it helped tremendously, but crap. This is so much the reason why I cannot keep on diets. My illness has destroyed my willpower and confidence I can lose weight anymore. And when I feel so fatigued for so long, I just have to have relief. Even the low carb diet leaves me so weak, but I have tried so many other diets (Calorie restriction etc) that also just fail because of this.
Anyway, I just need advice or tips. I can usually make it through the day without carbs, and do so, because carbs during the day for me triggers me badly to desperately want more carbs within 2 hours. I need to prepare something in advance so I don't go for the chocolate caremel stuff (I have this stuff around, because I make chocolates for family. Guess I might have to stop that :() I can prepare low carb deserts?, and do, but even with those, I stall in losing weight.
Does anyone have any good tips/ideas for those situations where I have to get relief from debilitating fatigue?
Halp! =p :+)
http://toadlily-gamer.blogspot.com/2009/10/snowy.html
I am sad, and could use some advice. I suffer from fibromyalgia yes, but I first got CFS in 1998 (Finally diagnosed then, but started getting ill in 1995'ish). Anyway, some days, I am so fatigued (Usually after doing too much the day before), walking to the kitchen is hard (about 30 steps oO), standing up long enough to wash dishes is hard. Things like lifting my hands far enough up to look in kitchen cabinets is too hard. Holding a phone up for longer then 30 seconds?, well, yeah , you get the idea. I lost 2/5 of my blood supply one time after a surgery when they had sent me home. It kinda feels like that. Barely able to talk.. walk etc.. I was fading out with 911 on the phone. Anyway. Probabaly more info then you needed to h ear. :+)
After about 26+ hours of this on Thursday evening, with no relief, and no medications can help with this, I simply have to have some relief. The only thing that helps is carbs. (I am on a low carb diet). Raising my blood sugar is the only distraction and relief I can get. In fact, when I went to the cardiologist for surgery pre-req last Wednesday (Hence the collapse after. I had to drive 2 hours, and it was a grueling day), he found my BP was 128/30 on my right side, and 100/60 on my left. He got concerned so we are doing both a nuclear and echo test next week. K, sorry again for trailing off.
Anyway, as I said, only raising my blood sugar is the only way I have found relief. So yeah, I went and had a caramel apple. the whole thing. O, yeah. and it was coverred in milk chocolate. Yes it helped tremendously, but crap. This is so much the reason why I cannot keep on diets. My illness has destroyed my willpower and confidence I can lose weight anymore. And when I feel so fatigued for so long, I just have to have relief. Even the low carb diet leaves me so weak, but I have tried so many other diets (Calorie restriction etc) that also just fail because of this.
Anyway, I just need advice or tips. I can usually make it through the day without carbs, and do so, because carbs during the day for me triggers me badly to desperately want more carbs within 2 hours. I need to prepare something in advance so I don't go for the chocolate caremel stuff (I have this stuff around, because I make chocolates for family. Guess I might have to stop that :() I can prepare low carb deserts?, and do, but even with those, I stall in losing weight.
Does anyone have any good tips/ideas for those situations where I have to get relief from debilitating fatigue?
Halp! =p :+)
~ toad
http://toadlily-gamer.blogspot.com/
http://toadlily-gamer.blogspot.com/
Topic: RE: Just checking in How is everyone
We're enjoying a sunny but cool fall with al the gorgeous leaves turning color. I'm especilly enjoying it because I got the brace off of my broken leg last week and started PT this week. I'm getting stronger every day and my therapist says she's gonna have me able to move better than before I broke my leg so that would be a blessing. She knows and respects that I have fibro and makes sure I don't try too push too hard and suffer later. So hopefully my winter will be more mobile.
Topic: RE: Lyrica
Hi there, I was on Lyrica for over a year, can't remember the dose but it was alot and very expensive. I stopped taking them because of the weight gain, and the price, I couldn't handle the $500 every 3 months (plus that not being the only med that needs filled at the time) I am now on Gabapentin (sp) thinking it would be cheaper...NOT!! Too late to turn back. I loved the prednisone, took all the pain away, felt like a new person but started packing on the weight even more...Can anyone tell me how much the Cymbalta is?
Topic: RE: Just checking in How is everyone
Love My Danes 
Hope you are doing okay, Pam. I love the fall. I love the colors and knowing about all the festivities to come.
I always have a miserable time with hot weather (at least before the surgery). Don't quite know how I will handle the cold weather now that I have had surgery and lost weight. I have noticed that my feet get miserably cold the last few weeks.
With this being another lean year (financially), I'm sure we won't be cutting the heat on too much. We like the cooler house, just hope we don't get miserably cold! (In Ga. we don't have too many really cold days). I told my husband that this year we may just get a "Charlie Brown" tree for Christmas!
No matter what, I love the spirit and fellowship of the holiday season, so we will manage.
Hope everyone's doing great.
Bonnie
I always have a miserable time with hot weather (at least before the surgery). Don't quite know how I will handle the cold weather now that I have had surgery and lost weight. I have noticed that my feet get miserably cold the last few weeks.
With this being another lean year (financially), I'm sure we won't be cutting the heat on too much. We like the cooler house, just hope we don't get miserably cold! (In Ga. we don't have too many really cold days). I told my husband that this year we may just get a "Charlie Brown" tree for Christmas!
No matter what, I love the spirit and fellowship of the holiday season, so we will manage.
Hope everyone's doing great.
Bonnie
Love My Danes 
Topic: Just checking in How is everyone
Just checking in how is everyone? There is sure a fall chill in the air. In the back of my mind winter coming I hate the chilled to the bone feeling but we will survive.We are all tough we live with fibro and I really believe NOT everyone could !!!
Topic: RE: Savella
I noticed weight gain and no pain relief. Mostly, the lack of pain relief and the fatigue is what made me get off of it.
"Don't sweat the petty things- and don't pet the sweaty things."
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