Recent Posts
Topic: RE: fibro interfering
We all know the difficuly you are having, most of us are in the same boat. First step would be back to your PCP, a rheumatologist or pain specialist to get meds that actually work for you. I take cymbalta and morphine everyday to be able to function. There is still pain but it's not so bad that I can't take care of everyday things like shopping or fixing meals. It's really hard to work at weight loss when you are in pain so first you have to deal with that. Then instead of walking how about an exercise bike or water aerobics. I have a recumbent bike and that's what I have to use for exercise because I have back problems. It takes he pressure off your legs. Most of all just give yourself a break because we all have to take days off to rest up and find that happy medium between too much and not enough excercise. Do keep coming back here the folks here are great! We all need help and each other!
Topic: RE: fibro interfering
I swear I could have written every word of that myself. are we twins?
only difference......
I had lap band, then lap band removed, then nothing for 4 1/2 months, then failed RNY, then nothing for 2 months and then finally VSG. phew !!!
I lost 40#, regained a few, lost more up to 75# and regained 15 last fall that I still have about 10 of.
I am so frustrated I could scream.
and I have the same thing with excercising because of the fibro AND I have a messed up foot that Im on disability for... and that prevents me from walking most of the time. well walking for excercise anyway.
I just cant seem to get back in the losing mode no matter what I do.
gee, I guess I wasnt much help to you. I did a good job rambling tho.
I hope you find success and help real soon. good luck to you.
gentle hugs to you too
only difference......
I had lap band, then lap band removed, then nothing for 4 1/2 months, then failed RNY, then nothing for 2 months and then finally VSG. phew !!!
I lost 40#, regained a few, lost more up to 75# and regained 15 last fall that I still have about 10 of.
I am so frustrated I could scream.
and I have the same thing with excercising because of the fibro AND I have a messed up foot that Im on disability for... and that prevents me from walking most of the time. well walking for excercise anyway.
I just cant seem to get back in the losing mode no matter what I do.
gee, I guess I wasnt much help to you. I did a good job rambling tho.
I hope you find success and help real soon. good luck to you.
gentle hugs to you too
Topic: fibro interfering
The pain is bad enough that it is interfering with my working out, getting out walking, going to the gym, and when I hurt I tend to turn to food. I don't know why, maybe its from when being a child and ya got a boo boo and mom would come and fix the hurt, and then give a treat for being a good little girl. So maybe that is part of why I eat. I have to change this, the 60 pounds I gained is so wrong, it saddens me that I didn't act sooner when the weight first started coming on me. Time for help with the pain. Lyrica helps a little but just isn't doing the job. I hurt so much in the mornings I can hardly crawl out of my bed, and then walking is another story that I will spare you of, knowing most of you know, and relate. I just need all the support and help thats out there. Thought I could handle the fibro on my own, Oh been on ssd since 05 for the fibro, they turned me down for my bipolar 2, but approved me cus of my fibro and what I go through having it. Thought I could handle it without others who can relate. Dr Mom Bf, you know, they was all I need, wrong. It is becoming to much almost to deal with, and then with the weight gain after having the RNY is very sad and heart breaking to me.
Topic: RE: Just checking in How is everyone
actually? I havent even set the date for my surgery yet. And, it's really not cravings. It's not being tired. I guess I can't explain it well enough. I will try again; please bear with me.
When I crash from doing too much (my functionality is extremely limited) , I mean that my blood pressure crashes for days on end. it stays at about 70/40'ish. The only way I can get relief (without going on the medication they would want me to) is to raise my blood sugar, or sodium levels. but blood sugar works best. I lost 2/5 of my blood supply once. It feels a little like that. Your barely conscious. You can barely move past say 20-30 steps without having to sit down. You cannot think clearly. I can only take that semi-consciuous state for so long. I lasted this time for 2 days before I was just going nutz. Raising my blood sugar levels is just temporary, but it relieves the semi-conscious feeling, if only for 30-40 minutes. I used to be kinda an extreme outdoors woman. I went from rock climbing competetions, skiing, mtn biking, backcountry hiking, swimming etc.. to slowly to a point where when I would go to the gym and workout for an hour, I'd be so sick the next day, I could not go to work. Long story short, I finally was too weak and too fatigued to work anymore. I mean, I couldn't brush my own hair. I couldn't raise my hands above my chest. I couldn't hold a phone for longer then about 30 seconds, then I 'd have to switch hands. Which was fine anyway, because taling on the phone was so exhausting, I would break out in a cold sweat and want to pass out. I was like that for 4+ years. But I am so much better now! But still, I cannot do too much or... the extreme fatigue again for days. Last week, after a trip to Steamboat springs (2 hours both ways) to see the cardio doctor, after coming home, I couldn't stand up long enough to do the dishes until 3 days later.
Anyway, sorry to try to explain it. But that's what I am up against at times. I think I just will need to do a calorie restriction thing instead of low carb diets. I don't really know. I guess it all depends on what my cardio doctor says. I mean, maybe the test will reveal something that is wrong with my heart, and thus, the answer to why I have been so ill since 1998+. I am kinda praying they find something. I have been told it was CFS, and was diagnosed by a top doctor at the National Jewish Hospital in Denver. I didn't start getting Fibromyalgia until 2004'ish. So, I guess I just still don't have a clue. I sure wish I did.
But I am hopeful to have the surgery! I have lost 12 of the 20lbs Dr. Johnell wants me to before surgery. ANd this week, after the sleep study and cardio testing, we'll know more one way or the other.
Thanks for listeneing!
When I crash from doing too much (my functionality is extremely limited) , I mean that my blood pressure crashes for days on end. it stays at about 70/40'ish. The only way I can get relief (without going on the medication they would want me to) is to raise my blood sugar, or sodium levels. but blood sugar works best. I lost 2/5 of my blood supply once. It feels a little like that. Your barely conscious. You can barely move past say 20-30 steps without having to sit down. You cannot think clearly. I can only take that semi-consciuous state for so long. I lasted this time for 2 days before I was just going nutz. Raising my blood sugar levels is just temporary, but it relieves the semi-conscious feeling, if only for 30-40 minutes. I used to be kinda an extreme outdoors woman. I went from rock climbing competetions, skiing, mtn biking, backcountry hiking, swimming etc.. to slowly to a point where when I would go to the gym and workout for an hour, I'd be so sick the next day, I could not go to work. Long story short, I finally was too weak and too fatigued to work anymore. I mean, I couldn't brush my own hair. I couldn't raise my hands above my chest. I couldn't hold a phone for longer then about 30 seconds, then I 'd have to switch hands. Which was fine anyway, because taling on the phone was so exhausting, I would break out in a cold sweat and want to pass out. I was like that for 4+ years. But I am so much better now! But still, I cannot do too much or... the extreme fatigue again for days. Last week, after a trip to Steamboat springs (2 hours both ways) to see the cardio doctor, after coming home, I couldn't stand up long enough to do the dishes until 3 days later.
Anyway, sorry to try to explain it. But that's what I am up against at times. I think I just will need to do a calorie restriction thing instead of low carb diets. I don't really know. I guess it all depends on what my cardio doctor says. I mean, maybe the test will reveal something that is wrong with my heart, and thus, the answer to why I have been so ill since 1998+. I am kinda praying they find something. I have been told it was CFS, and was diagnosed by a top doctor at the National Jewish Hospital in Denver. I didn't start getting Fibromyalgia until 2004'ish. So, I guess I just still don't have a clue. I sure wish I did.
But I am hopeful to have the surgery! I have lost 12 of the 20lbs Dr. Johnell wants me to before surgery. ANd this week, after the sleep study and cardio testing, we'll know more one way or the other.
Thanks for listeneing!
Topic: RE: Just checking in How is everyone
I have such problems with low blood sugars and I usually have 4-5 glucose tabs on and off all day. It is crazy !! I try to make a good fill in for things I am hungry for. I have gained like 10 lbs with in the past 2 months and I am not eating any different.Its always a constant battle even after surgery.
Topic: RE: Just checking in How is everyone
It is soi hard to reain strength lost. You can't do too much yet you have to do enough.
Good ideas for eating "good" things.
Let us know how you doing!!!
Good ideas for eating "good" things.
Let us know how you doing!!!
Topic: RE: Just checking in How is everyone
Lilli that is great that the duplexes sold. Enjoy your new apartment !!!!
Topic: RE: Just checking in How is everyone
Yes Bonnie i think a lot of us will have a lean year for Christmas. But I think that is the way it is meant to be. To make things there more meaningful.
Topic: RE: Just checking in How is everyone
I know what you mean. We all deal with so much. Good luck I have a 10- 12 lbs I need to loose.
Topic: RE: cold feet for surgery
Hoping you are feeling better by now, but November is a ways off yet. I wouldn't worry about it, you should be all better by then. Keep on track with the surgery. Let us know you're doing better.